Endometriosis UK
34,103 members30,497 posts

Not coping

I thought having a lap and hysterscopy (Feb 2016) would make things better and it did for a couple of months. Well with the pain. The diagnosis of endo really hurt me. I said for years something wasn't right and all I got was but the scans don't show anything.

My pain has come back on and off, exhausted /burnt out for a good couple of weeks before I start bleeding. Which will last for 10 days then I barely get a break before more bleeding. After which I can stop bleeding for a month or more.

I was diagnosed with IBS when I was a lot younger but when I'm bleeding and exhausted this flares up terrible. You could think I was pregnant at times with the bloat.

Finding it hard with eating. One minute all I feel like is rubbish to eat and then the next I'm not very hungry.

I had scar tissue cut off my bowel during my lap but now I seem to keep having bowel movements, especially after a meal.

Is it normal to feel like you need to pass water more than usual? I find when bleeding I need the toilet more and when I have pressure or feel cramp.

Going back to gyn in September. Very nervous about it. Don't know if I should be discussing about coming off cerezette and trying something else.

Feel like I'm on an emotional rollercoaster and it doesn't help as some other stuff going on as well.

You may also like...