Advice Please: Hi, I have been been... - Endometriosis UK

Endometriosis UK

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Advice Please

Blonde1839 profile image
4 Replies

Hi,

I have been been diagnosed with PCOS however in addition to this Ive been having severe pains and Gynae problems for the past year so I had been referred to the gynaecologist for investigation. Following investigation the gynaecologist queried endometriosis, I have been commenced on prostap injections monthly and recieving HRT in leu with this however I just feel so upset as I have only turned 22 and am worrying about my fertility and what to expect in the future when I wish to start a family. Additionally i am really struggling as I have started putting weight on put I barely eat and the problem is that in the past I had an eating disorder which was very bad but with this weight gain and feeling so alone I'm beginning to struggle with issues surrounding my eating again. I just feel really isolated as I don't know anyone on this medication and even my pharmacist and nurse are shocked that I am on this given my age. Will it get better? Thanks X

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Blonde1839
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MeganMae profile image
MeganMae

Hello my love.

I really would go back and ask for a diagnostic laparoscopy for endometriosis, then you will know 100% if you have it, medication doesn't treat it, it just trades one set of symptoms for another. Please really push for it, and preferably at a BSGE centre. I refused Injections and said I wanted surgery for a diagnosis.

If you look on Pinterest, there are some really great women who show how you can lose weight with PCOS and I know it is a slow process but it can be done, they show what to eat and what not to eat etc, there is hope, I know it doesn't feel like it now.

It's taken me 9 months to lose a stone, which is good, but not compared to how I used to lose weight, so it can be done! I do weight watchers and do my best to stick to it and it helps maintain a weight and sometimes lose. But I know I'm not as bad as some PCOS ladies, it is a lot harder for some women unfortunately.

All the best and good luck xxx

Blonde1839 profile image
Blonde1839 in reply to MeganMae

Hi,

Thanks for replying the consultant said I have to try this first then I will hopefully be getting a laproscopy if the pain stops on the injections for further investigation. It's just a nightmare as it all bloating mainly :(

MeganMae profile image
MeganMae in reply to Blonde1839

I feel you with the bloating, used to look 6 months pregnant before my surgery, really! It's worth a try again, say you don't feel it's working, it causing you more trouble being on medication and you aren't happy staying on it. Lay it on really thick! Good luck!

Blonde1839 profile image
Blonde1839 in reply to MeganMae

Il give it a try, thank you :)

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