Young endometriosis sufferer.

[ab2964]

Hi everyone,

Im new to this forum so here is a bit of a background behind my diagnosis:

I was getting a lot of abdominal pain early last year which lead me to go and see my GP- they tried a lot and eventually sent me to see a gynaecologist who did an ultrasound and didn't find anything and then said it is most likely to be endometriosis but that for me they cannot fully diagnose due to my age.

As i am only just eighteen years old there were limited things that they could try, they can not do a laproscopy as there are increased risks at my age and the contraceptive pill caused me to have severe high blood pressure so im basically only just managing the symptoms with mefenamic acid.

I'm quite woried at the moment though because in my last relationship this caused a strain as sex was so painful i have become scared to even do it now and its so bad i'm scared to get into a new relationship. have you guys got any help or advice on this? I need to try things to reduce pain and also to mentally be able to help myself with this, all my friends don't understand and i feel stupid not being able to do something that so many people can do.

I love this forum it really makes me feel less alone! Hope to hear from you all soon with help or advice or your stories to do with any part of endometriosis.

xxx

[CP17]

I'm sorry to hear you are going through this. Regarding pain relief, I'm wondering whether the contraceptive pill that caused your blood pressure increase was estrogen and progesterone combined or just progesterone, and what hormone was responsible for the high blood pressure. The reason I'm asking is that if it was estrogen, there are progesterone-only pills as well as a progesterone-containing IUD that might be options for you? I'm not a doctor and of course I don't know what would be safe for you... these thoughts are just from my own experience. I can't take estrogen, but have gotten a lot of pain relief from taking the progesterone-only pill continuously. Good luck on figuring this all out.

[ab2964 in reply to CP17]

Thank you for your reply! I unfortunately have tried both type of contraceptive pills and they both push my blood pressure up extremely high! So at the moment the only relief I can use is the mefenamic acid and paracetamol! Thank you for sharing with me I appreciate it good luck with everything xx

[CP17 in reply to ab2964]

So sorry to hear that you can't use either of them. You've probably already tried this, but one more idea ... the other thing that reduces my pain is heat, either a heating pad or sitting in a hot bath with the water over my abdomen.