This is more of a rant. After surgery May 2015 I was informed I would have a 3 month follow up. After chasing it myself I got an appointment 2 months later. I should have had another follow up in April after chasing it yesterday I have an appointment for the 8th of August. It does my head in.
Not that I hold out much hope from my follow up if the surgeon is anything like he was last time. Didn't even take 5 mins before seeing me to have a quick read of my file. His first question was "do you know about endometriosis?". I should have said I would bloody hope so after being diagnosed in 2011 but I was so gobsmacked I could only manage a yes.
He said that he didn't treat all the endo, that I would require more surgery prob eventually have to have a hysterectomy and then asked why I looked so disappointed. His only advice was to take the pill or he could refer me to the pain clinic. Wouldn't give me an indication of what stage the endo was or where just said don't get too hung up on the details.
Can you ask for a different consultant??? I am dreading my next appointment,
x
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dabba76
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Is this consultant on the bsge list, if not you need a refferal to a specialist centre. Ring your consultant s secretary and ask for a copy of your laparoscopy notes it should tell you where the endometreosis was found,
A hysterectomy isn't a cure for endometreosis not unless you have it in the wall of the uterus and that's called adenomyosis, a hysterectomy will not help unless all your endo in excised thoroughly,
I would find another surgeon, for a second opinion
Thank you for your reply. I am under general gyne at my local hospital. The surgeon does work for a private hospital near me but not a bsge hospital. I have a copy of his lap notes but the writing is terrible and I cant read it. I will contact his secretary to see if she has a typed copy.
Does my GP refer me to the bsge centre? I'm considering going private x
Thanks Linda. Trouble is I don't know what stage I am.
The secretary's response:
"Dear Kelly
Glad to hear you have a follow up appointment.
I do not have any notes about surgery however you were at a clinic appointment in October at which point Dr Tkacz wrote to your GP. Your GP will have this letter.
Regards"
Called GP who were most helpful and I can pick up the letter from the surgery after paying £1 (LOL).
Does not sound too good. The consultant did my lap came around to see me at 9:00pm the night of the surgery. Then again at 7:00am the next day to discuss all the findings, and shown me the pictures take. He normally copy me all the letters he send to the other doctors. The guy's poor family. Don't get see him much.
I would change the surgeon if you don't feel comfortable with him. A friend's daughter was treated by a surgeon who turned out to be an alcoholic and suffered terrible consequences. She did not like him at the beginning but did not changes straight away.
It was done at the specialist centre. I had very good experiences with doctors so far. A different consultant personally called me at home on a Sunday. I was very shocked! There are very good doctors around and they generally associate with other competent ones.
Just as suspected the letter tells me nothing and contains inaccuracies (I cant seem to attach it).
He says he removed endo from my abdomen (his initial letter to my gp stated partial removal). He also says there was division of adhesions (he told me at my 1st follow up he didn't do anything with the adhesions). He says I feel better in regard to the pelvic pain and symptoms have improved (whilst there was a slight improvement in pain the associated symptoms were still getting me down).
He goes on to say he discussed in a "very detailed" way lap surgery and details of my situation in the abdomen. Bollocks!! He wouldn't not comment on my endo or answer my questions, he told me not to get hung up on the details.
Re management he said the best treatment would be the POP but I was against this as "my symptoms had improved". WHAT?!??! I said I didn't want the POP as it could increase my depression and migraines.
I have his operative report but the hand writing is illegible. Do you think you could make sense of it? x
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Endo found but still bit confused
No endo after lap...?
Appointment with specialist changed :(
No follow up required after surgery?!
