Firstly I need to thank you amazing ladies for responding to my message earlier today. You started by lifting me out of a desolate frame of mind, you encouraged me to go find help, and you stayed with me though that horrible drive to A&E when you are steeling yourself to be told "your bloods are fine, there's nothing wrong with you so go home."
Today I went up to A&E to beg for the scan my GP tells me I'm jumping the gun asking for. The admin could see I was in pain and she helped speed me through, the triage nurse wasn't great but fortunately I didn't have to see her long, and then I was seen fairly swiftly by the consultant. And I mean in record time!!! In the past I would sit in a hard plastic chair for 5 hours in agony and be sent home. Today I was put on a bed and they were nearly desperate to treat the pain so I didn't have to wait in agony. This is unprecedented.
The wonderful male consultant LISTENED to me, made careful notes, discussed his concerns about both the endo and ruling out my appendix, discussed what he could do for the pain and what he was planning to do to get me seen by gyne, even if it meant admitting me. At this point my partner arrived to be with me, for which I was both sorry for his having to be there and also extremely grateful he was.
An then at shift change he told me he was leaving and that someone else was looking after me. This never happens. And the someone was another amazing female consultant who LISTENED to me, and assured me she was referring me to gyne for a scan. The same scan I had begged my asshole GP for but was told I was jumping the gun.
And then a porter appeared and it was like a dream. I glided upstairs all the way to gyne, to a little waiting room where I was sat in a chair, my partner beside me. We weren't there long when a woman left the room beyond and through the door I could see the ultrasound machine. I burst into tears. There it was! Right there! I had begged my GP and it's right here!!! I was flooded with relief.
I spoke with the lady consultant for a while, she did a scan and found a 3cm cyst on my lone ovary. So it shouldn't be causing me such pain, but at least there wasn't NOTHING. I will wait to see if that pain subsides in case it is normal ovulation/cyst pain. They will scan me again in 6 weeks. If the pain doesn't ease on its own we will know it's probably more adhesions and lesions.
She talked to me about considering whether or not I keep the ovary. I can keep it and maybe continue to suffer endo aggravation from my own hormones; I can try zolodex and see if that helps shrink any endo that might be happening; I can have the ovary removed and go into surgical menopause which at 41 I'm not sure I'm ready for. I need to spend the next while exploring a range of options for a range of possible eventualities. I might have to go ahead and have them look in just to see if the adhesions are as bad as we fear, and it would be disappointing if they are after I've had such a huge surgery last year. But that's endo for you.
I want to thank you again, sisters. Thank you so very much for your advice and support. I really wouldn't have got a slightly better peace of mind today if it hadn't been for you. I'm so grateful you're here and I hope you're all well.
Huge hugs xx