Endometriosis UK
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Endometriosis and auto-immune diseases

Hello everyone,

In my online research on endo, it seems that there are ties to auto-immune disorders, although not fully known what the link is (and some think it is an auto-immune disorder in itself). It got me thinking as I have a very strong family history of auto-immune disorders - my dad suffered from ankylosing spondylitis, my mum suffers from sarcoidosis (which is in the same family as lupus) and my eldest sister suffers from multiple sclerosis.

Does anyone else have an auto-immune disease as well as endo or have similar family links?


2 Replies

Endo has been classified as an autoimmune related disease and shares many of the characteristics of autoinnumity. Women sometimes have other autoimmune diseases but the family link seems stronger as does the endo family link. Interestingly chronic fatigue syndrome and fibromyalgia are now 'associated' with autoimmunity and this seems to explain the miriad of seemingly unrelated symptoms so many women with endo have from unrelenting fatigue to dizziness, headaches, confusion, memory loss, visual problems, joint problems and the many others,listed under CFS/ME.


I have CFS/ME as well as confirmed adeno and suspected endo - awaiting a lap.

My mother and sister both have CFS/ME and my mother had rheumatoid arthritis as a young girl.

I seem to be the only one with gynaecological issues at the moment but we're keeping a close eye on my daughter and niece as they develop.

Fascinating to read about the link between the different conditions - explains a lot!!


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