Hysterectomy booked!: I suppose I'm looking... - Endometriosis UK

Endometriosis UK

72,734 members53,171 posts

Hysterectomy booked!

anjies profile image
4 Replies

I suppose I'm looking for some positive feedback! 

Today I booked my hysterectomy anticipated for early July.

It's not been an easy decision and I'm still wobbly about it.

Close friends and family are being great but my husband isn't happy. 

I would love to hear some positive feedback to reassure me I'm making the right decision.

According to gP's and specialts this really is my last option. I've been lucky enough to have two beautiful daughters. I'm 40 this year and I just want to start being in control and enjoy life again. To be more predictable not a waiting game!

I'm not under any illusion that this is a cure but it's bloody good step.

I'd appreciate any thoughts. X

Written by
anjies profile image
anjies
To view profiles and participate in discussions please or .
Read more about...
4 Replies
anjies profile image
anjies

At 11 I stated my periods and each time it was angony at that time in the 80's the doctors just said it was normal and as I got older it should improve. At 16 I came home from a family holiday and my stomach was swelling and the pain excruciating. My mum took me to A&E. The doctors were convinced I was having a miscarriage well I would have had one on Mary then as still a Virgin! I proved it when the finally scanned me to discover ovarian cysts particularly one larger than an orange. I was planned for surgery the next day but burst in the night. Causing severe damage to my left ovary and tube. It was decided there and then I needed birth control. For several years I managed just about but avoided life as soon as my period came missed school, failed my A levels etc... I couldn't cope. Doctors didn't take me seriously. In and out A&E on the bad days. Over the years I tried various different birth control pills non really helped so I was finally put on a pill that stopped periods. I'd been told having children would be 50/50 due to the damage of the infection after the burst cysts and susequent cysts. I think i was about 19 when they wanted to look further Into my case. Growing up I didn't try with my relationships because sex was too painfall. I must have been about 21 when they said is could be endo and wanted to perform a lap. So they did and it was a mess. They removed what they could and then put me on strong painkillers. I had more removed 2 years later. By this time is met my now husband. At the time id come off all meds as part of a review and some how I fell pregnant. My first miracle. It's wasn't easy pregnancy or birth and straight after I put on the Depo injection. Which was great for about 5 years but started to be ineffective so I tried more pills and the coil! Worst thing ever! 2010 I was taken in for another lap where it was even worse. My ovaries were stuck, my bowel and bladder were stuck and there was a lot scare tissue from precious po's and c section. I then decided I would try for another child. Two miscarriages and an emergency appendectomy i'd given up! Finally I did fall pregnant and have my lovely second daughter again by c section due to complications. I went back on Depo straight after but it become ineffective. I then developed tumours on my thyroid and had the left side removed last year After all this and the experimence with the medications, painkillers, strain on my marriage, my age and what a period means to me. I've decided enough is enough. Everyday is agony and I'm heavily dependent on condine as tramadol didn't agree with me! Sex is painfall. My moods are all over the place. My energy is non existstant. Need I go on!! It's time. I'm aware it's not a cure but it will limit a lot of my problems and the rest I can control! I'm ready and want to start having a life I can plan not wait for this disease to decide what I can do each day! 

I'm no stranger to surgery so fully aware of risks etc...

Sorry to ramble on!

anjies profile image
anjies

This is why I have to what till July so I can have both surgeons available. Yes the plan is to remove ovaries and cervix I think and them as much endo they can find! 

anjies profile image
anjies

I also have also been diagnosed with IBS since the age of 19.

anjies profile image
anjies

Thank you. I've found your input helpful and reassuring. Let's see how it goes. X

Not what you're looking for?

You may also like...

RV Endo - Hysterectomy /Ovaries query

Hi All, I'm after some feedback please. Is there anyone who has had a hysterectomy (kept ovaries),...
vixstar84 profile image

Hysterectomy

Hi, I am new to here and hoping to get some advice. Ive suffered from endometriosis for over 20...
Angelnurse profile image

Total Hysterectomy ...

Hi, I'm completely new to this and hoping someone can help... I've just recently been told that I...
Maria07 profile image

Hysterectomy

Hello everyone, I've never written a post on here before, I've always been a 'reader'. I have...
Shanee profile image

Hysterectomy update

Hi, so I had my hysterectomy on Monday. It went well though when they opened me up they found...
Jenn2022 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.