Suffering from Endometriosis..... - Endometriosis UK

Endometriosis UK

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Suffering from Endometriosis.....

metoyou42 profile image
5 Replies

Hi all,well I consider myself a bit of a expert when it comes to bleeding all the time & passing clots,visiting gp in & out of hrs,numerous admissions to control my pain & blood transfusions.....it started after my 1st son 17yrs ago & I was 27yrs old & I battled with the specialist-doctors-consultant until I was 34yrs old!!!!! 

9yrs of constant pain, bleeding heavy with clots, numerous hospital admissions for pain relief, scans then they tried medication & injections for the Endometriosis but it always came back after a few wks  I was given a Laparoscopy to confirm how bad it was then I had a full Hysterectomy with my ovaries at 34yrs old....it put me through the menopause instantly but that was a piece of cake compared to Endometriosis, I am now 44yrs old & never looked backed  totally pain free,no bleeding & no hospital admissions.

If anyone would like some advice please ask!!!!!!

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metoyou42
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urgley profile image
urgley

Thank you for posting, it's good to hear a story with a happy ending! 😊

This is good to read. There are so many hysto horror stories, it can be overwhelming when you're facing the prospect of a hysterectomy. You're time line is very familiar to mine and now I'm coming to terms with the inevitability of a full hysterectomy. 

metoyou42 profile image
metoyou42 in reply to123sickofbeingsick

Please feel you can ask me any questions & I will answer them as honestly as I can. I didn't have any support from groups when I had my hysterectomy so I was pretty much alone & i know how frightening it can be.....

JeanOsborne profile image
JeanOsborne

Hi I've been suffering since I was 15 (now 42), finally got diagnosed last July, with stage 4 endo and possible adenomyosis. Had total abdominal hysterectomy with removal of both tubes and ovaries along with excision on 3rd March. I already feel so much better than I can ever remember feeling. Fingers crossed it will last. I had a wonderful endo specialist and has phoned a few times to see how I'm doing. I have high hopes for the future thanks to him. Glad you are doing so well, hopefully it will be the same for me.

metoyou42 profile image
metoyou42 in reply toJeanOsborne

Hi Jean,hope you are still feeling the benefits from your FAH & that you are pain free. It makes a difference when you have such a good supportive Endo team too who contact you & follow your progress.

If there are any further questions I can help you with now you have had surgery,please do not hesitate to contact me,I am happy to answer any questions no matter how small or silly you may think they are. Xx 

Take care & rest!!!!

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