Please help. Just had a follow-up letter from the consultant I saw nearly two weeks ago and apparently there is also a chance I have adenomyosis too! This wasn't mentioned at the appointment. I know I have endometriosis and I know the prognosis doesn't change but why wasn't I told at the appointment so I could discuss it with him!!!!
In shock!: Please help. Just had a follow... - Endometriosis UK
In shock!
Take care and thanks for your replies to my post X
Hi, that's not far that he didn't tell you, how old are you, I gad Adenomyosis, so if you have any questions I've done some homework,
What gave you had done so far?
Xx
I'm 39. I had a hysteroscopy and mirena coil fitted. After being in agony for month they removed it. I had an mri, laparoscopy and some lasering done in November. I saw my gynecologist in Jan when he said because of the extent that it would probably be best to have a hysterectomy. I was referred to bsge at Worcester and saw him last month. Hysterectomy confirmed and prescribed zoladex and hrt which started Friday. He did mention my womb looked odd so I presume this is where the thought has come from. The appointment felt rushed as we had waited 1hr :35 mins to see him. Just wish he'd taken the time or made another appointment to discus x x
I was 39 last year, when I had my hysterectomy for Adenomyosis, I'm still in pain, but I was operated on by a genral gyne and whilst I think he was a great surgeon, I don't think he excised all my endo, so I'm due another lap in 3 months, and I'm starting prostap this week to see if it nessessary to remove overies
Did they say about your overies,?
As you are under a BSGE centre I'm sure he will excise all endo whilst in there doing hysterectomy,
Remember ask away if you need anything,
Where do you live?
Xxx
Sorry to hear this Nikki! There seems to be a bit of a pattern emerging here. At least you can do a bit of research now, I'd never heard of the other condition until I joined the forum. I hope it will all be sorted when you have your hysterectomy. Keep your chin up x
Well I have decided to call his secretary today. I am going to ask to either see him again or for him to ring me. I am really upset with the way it has been handled. The least he can do is discuss this potential new diagnosis with me. I am feeling much more positive and in control today so they'd better watch out!!!!!
Well after the letter I received on Wednesday from the consultant I tried ringing the hospital on Friday but his secretary was away until today. I rang another Secretary and left a message but no one replied. But today the proper Secretary rang and after I explained how unhappy I was she has agreed to make me another appointment with him before my operation! Now seeing him in May as appointment came today!