Hi
Just wondering if others could share how long it took for their diagnosis? I am 27 and just starting out in this process. Had an ultrasound last week and now awaiting referral to a gynaecologist. I have two children and don't plan on having anymore. I'm in so much pain every month with my 10 day long period as well as inbetween times now and extremely bloated, I look about 5 or 6 months pregnant all the time but have lost my baby weight.
I'm not sure what I have is endometriosis but it's something I suspect. I'm just feeling anxious that I have a long road ahead of me
It depends if you have a gynaecologist that understands endometriosis, a lot of them don't. I'd seen 5 different gynaecologists before diagnosing myself and finding an endometriosis specialist.
Thanks for your reply
how did you go about finding an endometriosis specialist if you don't mind me asking?
bsge.org.uk/ec-BSGE-accredi...
How many laps. did you have before diagnosis?. I have had one which didn't show anything but a scan showed possible Adenomyosis.
I had a lap for a burst cyst that didn't show the endo (although it must have been present), I know others that have had laps for other gynae stuff and they've not noticed the endo. It seems that if they aren't specifically looking for it they probably don't find it. Also, if it is sticking organs together or to the abdominal wall they are unlikely to find it as they don't want to pull the organs apart (they don't seem to think that the reason they are stuck might be the cause of the problem). They don't usually look in the Pounch of Douglas (below the uterus) either. So if you think you have endo, I would ask to have an MRI, the newer machines can detect it.