I may eat somebody if don't sleep tonight

[Jd27]

Today I've had the evils on me all day

Coz I never slept a wink last night

I'm afraid i will eat someone tomorrow

Just a few zzzzzzzzzzzz

😡🐏🐏🔫💤💤💤🍴🌛

[Hidden]

Hahahahahahaha...thanks for making me smile; I know what you mean though. I take amitriptyline every other day (50mg) to help me sleep but on those nights I don't I cannot sleep waking up every half hour or so.

Also, does anyone else have the issue where (due to so many surgeries and/or scar tissue) they constantly seem to need to urinate during the night?! Sometimes I seem to get up at least ten times!

[Jd27 in reply to Hidden]

If constantly fill like I got to got

When I do it's a dribble

And I can't hold it coz the pain gets so bad

X

[Hidden in reply to Jd27]

ME TOO! Slight dribbles and I think - I woke up for THIS?!

[Jd27 in reply to Hidden]

Do you have endo on the bowl and bladder ?

Mine was on my ovary and I'm really worried that it's on or in my bowl or bladder as i have problems going most day

[Hidden in reply to Jd27]

I had it bad on my bowel and some on my bladder; they had to leave some endo around my bowel at my last major surgery due to the time being under was over the expected limit.

It could be related to sciatica (which I also have) to be fair but it is really annoying; one night I noted I got up 17 times! thankfully it was on a Saturday so I could recover on Sunday!

[Jd27 in reply to Hidden]

When I had my lap its was only ment to be explorative to see if it was endo

And he said it was on my ovary and in my tubes

I think he only had time to remove and tidy me up

As on my last visit he said it's very difficult and invasive surgery

And put me on Prostate injections and HRT 1 month left of treatment

Day to day pain has got better

Put still have problems with going loo Every day

Really worried I may need to have surgery down their .

[Tboag in reply to Jd27]

Hi, are you under a BSGE centre with specialist endometriosis surgeons???

[Jd27 in reply to Tboag]

I don't know

What is a bsge centre

My surgeon was just a normal gynie I think

[Jd27 in reply to Jd27]

Sorry just googled it and yes I am my surgeon name was on their

[Jd27 in reply to Jd27]

The closes help group I could find was in Bristol I'm in Devon this is why I joined this group coz I going to go mad if I did not find some one to talk to

Is the BSGE centre ment to off me any help coz I've had none

[Hidden in reply to Jd27]

I've had a total of 12 ops over the last twenty years; the scarring is now so bad that they refuse to do anymore.

My worst surgery was one where it was to remove some of the endo and should have lasted around 4-5 hours; I was under for just over 11 hours in the end and they still had so much more to do but they brought me round as I'd been under for too long. Prostap is a good way to go to start with (as I did) but I would never recommend Danazol - I was like a homicidal maniac when I was on it and my weight increased by three stones in only 1 month resulting in a cardiac stress (similar to an attack but not as serious).

[Tboag]

Lol, it's horrid isn't it, have you tried sleep easy and things like that, I've been taking a loose Vera drinking gel for a few months and my sleeping has defo improved. Tastes yuk but worth it.

X

[Jd27 in reply to Tboag]

I got 7 hole hours yay

I will try any thing !!

[Hidden in reply to Tboag]

The amitriptyline helps and sometimes I use the 'nytol' tablets but I don't like to use them daily as I'm worried I'll become resistant to the effects!

[Jd27 in reply to Hidden]

Thank you

Iv tried nytol never worked

I just can't switch off drives me mad

[Riverchick in reply to Hidden]

I've been given amytriptilyn for endo pain at night but I'm concerned about using it as i suffer with anxiety and already take medication for that. Does anyone know if amitriptilyn can cause any problems with unbalancing mood.

[Hidden in reply to Riverchick]

It was given to me (and I've been using for several months now) for 1. response to pain, 2. helping me relax and 3. as an anti-depressant. I've not noticed any conflict with my other medication, including fluoxetine (Prozac). Did your GP or nurse say it would clash?

[Riverchick in reply to Hidden]

I found something on internet about unbalancing moodbut when I mentioned it to gp she just said it shouldn't do but didn't sound to certain, I wouldn't want to risk my mental health but I'm in so much pain at moment I'm now taking morphine but still in pain!

[Hidden in reply to Riverchick]

I think like most drugs some of the side effects have an impact on some people but not others; maybe try it for a week or two and see how it affects you...

[Riverchick in reply to Hidden]

Thanks for Your thoughts Maria

[Jd27]

No they never said it would clash !

I went 2, Friday's ago to my doc coz I've been on my pill for over 3 month to see if I need to stop and she did not know so she was going to contact my gynie and I'm still waiting to hear from her ??????!!!!!!😡

[Hidden in reply to Jd27]

I'd have a moan at the doctor if I were you...tell her to get a move on

[Jd27]

Just rang them no news

Thank you all of you I don't fill so alone today

And knowing I can talk is a great release

[SueBonnington]

I'm glad I've found this group, but it makes me really sad to see so many women suffering, especially not being able to sleep. If only medical marijuana was legal in this country, then we'd all get some sleep!

[Hidden in reply to SueBonnington]

I used to take it when I lived in the USA, it was so helpful it really was, not only to relax and sleep but it almost eradicated the pain. You can get a version here but I'm sure it's only for terminal illnesses like end stage cancer.