I have only posted a couple of times, but I have seen my gynae today and I could cry. I need help, idea and support - please.
A quick history -
Right sided endometroima removed with ovary and tube in 2003. From memory, a small amount of endometriosis was removed in addition to the cyst etc.
Left sided endometroima removed ovary and tube intact and no endometriosis visible in 2014 - previous scan showed no cyst/ issues with ovary.
Left side pain returned earlier this year - probably around a year after endometroima removal.
Threads not visible for copper coil, so had scan a month or so ago - all ok and no cyst visible on ovary.
Finally had my appointment today (very long story about incompetence by a GP). Apparently, it is too soon to be endometriosis as nothing was detected 18 months ago?
I have been offered contraceptive pill - I am not allowed it as my BP goes ludicrously high and puts me at risk of a stroke.
Then suggested the drugs for temp menopause - I am really not keen. I am 46 and already feel hellish with fluctuating hormones. Also considering how quickly this happened after my last op, I don't see this as a sufficient long term solution.
After registrar discussed with consultant, I was offered mirena coil. I had this before - bled constantly for 3 months, put my hubby through hell and then had it out. Dr tells me that these symptoms couldn't be the coil? It was.
Consultant says that it is too risky for me to have surgery just 18 months after the last time and because I have had three related surgeries (over 12 years!).
The Dr knows that I have pain every day - no one seems interested that I feel rubbish (exhausted, hormonal and totally ground down) all the time - she knows exactly how painful it was for me to have my examination. I need to go back in three months - I can think about having the mirena or suppressive drugs.
I know that I must look like I am being awkward, but I am truely not. I can't risk feeling more stressed/hormonal etc. it is rubbish enough to as it is and I have had most of these options in the past.
I need to be well enough to work. I need to be wheel enough to look after my kids and to actually have a relationship with my husband. I don't know what to do.
They don't really believe that my pain is endometriosis, it seems, but they will have me take hormonal drugs that I know don't agree with me just in case they may help.
I don't know what to do. I am crying with frustration. I know the pain. It is the same as before.
Help please? Can any one recommend a really good Gynae (in Scotland, happy to travel)? I will see someone privately. I just can't wait for another three months.
Thank you for reading.