Specialist endo nurse?

[Cazza25]

I have a dilemma. I'm now 49 and 6 months ago I had a pelvic mass removed by surgery, performed by the oncology gynaecologist at my local hospital. Sick of being told I had IBS by my GP I paid privately for scans and was then seen immediately by the NHS gynae team who thought it was cancer. Fortunately it was not. After surgery my surgeon was insistent that I went on Oestrogen only HRT, for all the right reasons, as I have no ovaries. I did some research and found that Oestrogen will likely restart the Endo so decided not to take anything. I saw a nurse from my GP surgery a few weeks ago and she said that I should be in regular contact with a specialist endo nurse from the hospital and should be on some form of medication to keep it at bay. I haven't made that call yet but wondered if anyone has had a similar experience and knows of meds that aren't HRT?

I'm coping with the hot flushes, needing the loo several times a night and the moods but would rather not have them!

Thanks.

[Cazza25]

Hi Lindle

I had a hysterectomy in 2011 but kept my ovaries "to see me through the menopause". My ovaries were removed during my last surgery as they were tangled up in the mass and a chocolate cyst had burst causing the chronic pelvic infection. The mass had formed on the stump of my cervix and had glued everything together. As far as I know the surgeon removed all of the endo and I started the menopause almost immediately after the surgery. I remember reading your post about HRT and that confirmed my decision not to take it. I don't know what the practice nurse meant when she spoke about meds then. She's on maternity leave at present so I can't ask her!

Thankyou for your reply. It's good to have this forum to be able to get information and help.

Cazza