Iv been diagnosed with endomet... - Endometriosis UK

Endometriosis UK

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Iv been diagnosed with endomet...

Laura-marie profile image
•7 Replies

Iv been diagnosed with endometriosis about 4 months ago.. and am waiting on my lab.. I am 24 it took the doctors nearly 4 years to diagnose me .. the pain is unbearable at times 😞 somedays it realy gets to me I just feel down and like crying I be in bad moods and take the pain out on everyone ..I would just like 2 no more about it and Is this normal

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Laura-marie profile image
Laura-marie
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7 Replies
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nicole_44 profile image
nicole_44

I think depression and other psychology side effects can be common with endo. Facing chronic pain can really get you down and question a lot.

Just remember how strong you are for battling this awful condition and always know you aren't alone in it. There are so many people here to support you!

What pain relief do you take and have you tried something like a tens machine to help pain?

Don't beat yourself up for feeling down- it's normal. It's okay to be emotional you are going through a lot! Sending hugs your way xxx

Laura-marie profile image
Laura-marie• in reply tonicole_44

Thank you so much .. am just takeing pain killers but there starting not to work anymore my pain is so bad at the time of the month 2 and there a year waiting list for my lab 😞

nicole_44 profile image
nicole_44• in reply toLaura-marie

Sorry to hear you're in pain :-( have you thought about getting the coil to help with the pain and settle your endo?

When was your diagnostic Lap? Was it recently? What stage did you get diagnosed with? X

Laura-marie profile image
Laura-marie• in reply tonicole_44

Yeah it to be fitted next week .. about 4 months ago but took the doc 3 years to find the problem iv been put on the argent list but it could take another year for me 2 be called

nicole_44 profile image
nicole_44• in reply toLaura-marie

Hopefully it comes much quicker for you!!

I hope you get some relief from the coil. Good luck xx

Heloo85 profile image
Heloo85• in reply toLaura-marie

Mine took exactly 12 months from lap to surgery on priority, which is urgent. And I was told at surgery this might not cure the pain, not even temporarily, and it didn't. I was also told because it was so bad I am high rate for it returning. That is why they call it chronic. I don't want to be a barer of bad news but it's true. This is why you now have to put in place other things to help you cope. Exercise, diet, stronger pain meds, tens machine ect ect. To find something that works for you .. good luck xx

sophie201795 profile image
sophie201795

it took them 8 years to diagnose me, 2 years to have surgery.

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