Don't no what to do?: I was diagnosed with... - Endometriosis UK

Endometriosis UK

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Don't no what to do?

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I was diagnosed with endometriosis when I was 20, and had problems every since. I've had three laproscopies my last one in 2013. I've been given the marina coil as there is nothing else that will help. I recently went back to the hosts to be told that they was going to operate again but a few weeks after receiving my appointment I got a letter telling me they can't do any more do me and to go back to my GP to talk about pain management. Which they have given me something that makes you feel hungover every morning and I struggle as it with tiredness along with the other problems. I don't no what to do it's making me miserable and starting to affect my relationship as its too painful. Can anyone help or suggest anything?? I just want to cry and hide away 😓

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applebird profile image
applebird

That all sounds bonkers, why would they say they need to operate and then renege. I completely agree with lindle - get copies of your notes and also whatever correspondence that's gone to your gp. Research specialists in your area and ask to be referred to one. You could also have a chat privately and go direct to the specialist for circa £120-£150 if you want to see someone urgently. Talk to your gp about all this and the adverse effects from meds. So sorry you're going through this x

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