Does anyone have any info or has anyone been diagnosed with Adenomyosis.
I was told I had endo about three years ago which was confirm by a Lap 2 years ago next month. After the Lap the pain was still there so I had another one in February this year.
This time no endo was found and I was discharged from Gynae and told to go back to GP.
I did this and was told nothing else can be done and that I would have to live with it. Well, I just sat their and cried. I'm 31 and I have to spend the rest of my life in pain, sometimes so bad that i cant move, cant get out of bed and the only thing I can do is to take painkillers that make me sleep through it. Why not just sedate me now for the rest of my life.
I did rant at him a bit. He said that as it hurt more when i exercised and had intercourse that the endo had damaged my muscles.
Well this was a few weeks ago now and have been pretty down since.
2 days ago my pains were so bad, I hadn't slept in 2 nights so I did some digging on the internet and googled (i love google) endometriosis muscle damage and Adenomyosis popped up. Not much info to be found but it appears that it is when endo is found on the muscles inside the uterus wall. It makes the uterus large and hard and it is found in 60% of hysterectomy cases that have been done for pelvic pain. It is hard to test before hysterectomy as involves biopsy the muscles in the uterus but this is done blind and a healthy muscle could be used.
Its all very confusing...
Do the doctors know about this..
and if so why was i discharged , should the gynae have looked into something else..
I feel like i have been prodded and poked and everyone wants it to be someone elses problem
Any info or advice would great
thank you all for reading my rant