Personal independence payment: Do any of... - Endometriosis UK

Endometriosis UK
46,123 members β€’ 38,835 posts

Personal independence payment

sw1996
sw1996
β€’23 Replies

Do any of you ladies get this? I got told by a friend that I could claim this through my endometriosis. But the forms are things silly such as eating food? I know other conditions this may stop.. But there are no questions or things to answer that really relate to the symptoms endo causes?

Be grateful for replies x

23 Replies
oldest β€’ newest
lillied

I've not heard of this. I'm on ESA (disability benefits) and I just send in doctors notes.

Hope that helps!

Reply
sw1996
sw1996
in reply to lillied

Thank you! X

Reply
Shehulk

I haven't done one myself but I was recently on a endo support meeting and they were talking about this. The advice was that you need to fill these forms based on how you are on your worst days. So for example if in your worst day you struggle to walk or you need help making yourself food then you need to put that in. Hope this helps x

Reply
sw1996
sw1996
in reply to Shehulk

Oh thank you! That does help x

Reply
littlelambie

Hi sw1996, I'm Claire and have been suffering from endo for 18 years now. Endometriosis truly is a disability for me and impacts massively on my life. I get PIP benefit and, yes, it was a pain in the ar*e to complete the form's!! I'm only awake now because of the pain but have just taken some more morphine so hopefully that'll kick in shortly and I'll nod off again! What I'll do is log back on later today and give you some advice about filling out the forms and explain exactly what information they're after. I'm happy to help darlin, it IS a disability and I believe more sufferers should get PIP! Speak later, night night!! xx

5 likes
Reply
sw1996
sw1996
in reply to littlelambie

Thank you so much! That means so much you done understand.

It is current 4.15am and I am awake in pain ..

There's a lot of benefits I would get from PIP as I can hardly work .. I need help paying for all my tablets, pads, tampons etc .. X x

Reply
littlelambie
littlelambie
in reply to sw1996

I've sent you a private message darlin, so give me a shout if you wanna sort this form out. Would be no problem babe xXx

Reply
Glondon1

Hey I've just seen this, would you be able to give me some advice also pls. Thanks x

Reply
Hidden
Hidden
in reply to littlelambie

l can you help me pls as well

Reply
dk1136
dk1136
in reply to littlelambie

Hi Claire, I'm currently on sick , I'm sick of letting work down, could you please send me the info too as this is something I may have to look into. Thank you x

Reply
Karmavixen

Please can you help me Claire. I'm at my Wit's end trying to claim this and keep getting declined

Reply
Ladybird189

Hi Claire I'm on morphine for this also I can't work too much pain can you advise me please about pip

Reply
Glondon1

Hey just came across this, would you be able to give me some advice also. Thanks x

Reply
TiaBegum_30

Hey can you help me too please, I have recent diagnosis of 1)endometrosis 2)congenital adhesion 3) bialateral polycystic ovaries 4)severe depression 5)lower back disc prolapse. My endo has been with me for 17years, I think PIP can help me in many way to support my needs. I have never been able to work steady & have been out of work since last 2years 😣. I can't even stand properly 😭

Reply
Nat2017

Can I have help with the forms please I'm in so much pain constantly I've had periods for 3 months none stop and hard to deal with Day by day especially with a toddler running around feel so depressed I've had over 7 operations and it's getting worse xx

Reply
Littlelady83

Hi I know this is a long shot but would you be able to help me try claim. Had endo 17 years and can barely hold a job down.

Thanks

Reply
hannah11

My dad works for charity that supports disabled people in the community, and one of the things they help with is filling out and applying for benefits/ disability allowance ect. Through him I've heard some absolute horror stories about the struggles people go through trying to successfully apply for these things.

The truth of it is that because of the cuts they've started making it incredibly difficult to get benefits. Unfortunately it is the most vulnerable people who are affected the most, such as the disabled and the elderly, And one technique they use is deliberately making the forms complicated and long winded so that people get put off, among other things.

Luckily, there are many charities such the one that my dad works for who have trained staff to help you fill out these forms and get the support you deserve. There should be one in your local community. If you're struggling with the form or don't know what to write, you should def think about contacting one of these organisations and making use of their knowledge.

Good luck! xo

Reply
dk1136

Hi Jun, hope you get it sorted. X

Sending hugs

X

Reply
Lou2016

Hello. I'm just starting to look in to this. Has anyone who's commented here had a successful application? Thanks

Reply
Robinson89

Hi ladies yes I claim pip for endometroisis is wasn't a easy process but I got rewarded top rate for both. I can't work as it's on my spine,bladder,bowls, I'm literally bedridden for 10 days. It took a lot of fighting the first time they said no to me and I gave up the second time i was not going down without a fight, I had my assment at home as told them I couldn't hardly walk within 2 days they awards it. Keep fighting ladies!

1 like
Reply
Amyc366

Can I please please have advice and help with forms xx

Reply
Joannaf1990

Can I please have information on these form and what it includes xx

Reply
Mewesy

Hi, I know this post is of a few years ago but wonder if anyone can give me advice about filling in the pip forms! Thanks

Reply

You may also like...