hi guys i have severe stage 4 endo and on loads of pain meds though have been taking them for over a year. i have had light headedness for years , comes and goes with no particular reason. i often get a shaking feeling like flu and feel like i cant get enough air, there are no issues with my heart or lungs and anytime its checked my oxygen stats are good. more recently the light headedness has gone to proper dixzziness and i am falling a lot, at this point i should mention that i have a big mass on my right side that compressess my main vein to my leg so falling isnt unusual but these falls are related to the dizzyness, it comes from nowhere, can happen standing, sitting or walking. its not pain meds and i am really careful with fluid intake so its not dehydration. last year i was in hospital for nearly a month and was told i had low blood pressure but since being out anytime its checked that is also fine. i have been checked for diabetes as high sugar foods like chocolate help for the very short term but again my blood sugar level was good. i am told my endo is as bad as bad gets and docs on nhs said there is nothibg they can do for me though i went private and they are willing to try surgery, i am scared to go for surgery till i know whats causing the dizziness, i am also having problems with short term memory but that could be pain meds and lack of sleep, pain makes proper sleep impossable. i use a crutch to help me walk and was given a wheelchair because of the fatigue/falls, there are sites i read that say my symptoms can happen to women during heavy menstruation but i have been on a jag to induce early menopause for over a year (decapeptyl) so it cant be that either, i am wondering if anyone else out there suffers any/all of these syptoms. the pain meds i take are gabapentin, tramadol , cocodamol, lidocaine pain plasters, i also take cinnazine for sickness, omneprazole and senna. I would realy appreciate any help or advice. wish you all a pain free day xxx
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