Endometriosis UK
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Back pain

Has anyone suffered from severe mid-lower back pain? I've suffered from endo for 20 years and am on the waiting list for a hysterectomy. I have been blessed with two children ( although it was a v difficult journey) and have now reached the end of the road with the pain and bleeding. Recently, the back pain has become unbearable. I don't know how I'm going to last until the op ( could be another 5 months' wait!). On Damarzipan, codeine and paracetamol, but not much relief! Going to work is so hard and the children need so much energy and attention. Any advice or idea what this new symptom could be would be appreciated.

6 Replies

Hiya my endometriosis causes terrible lower back pain, its so bad that i struggle to walk and stand some days and really gets me down. I now have monthly prostap injections that have been a godsend. You could ask to try that as for why we get back ache, well i think it is when it presses on ligaments but not 100%. Hope this helps and you start to feel better soon, Rachel xx


I suffer really badly with the back pain iam currently lying on the sofa with a hot water bottle on my back and a wheat bag on my tummy

I hope you get it sorted soon x


Thanks for this. Will look into it x


Pain I both hips??? X


Middle and radiating down to lower on both sides. Pelvic pain same time!


Hi E

Hope you're feeling better. I'm also waiting for a total hysterectomy and I asked the specialists for continous/monthly prostap injections until the op which they agreed with. If you've had the injections before and they worked, it might be an idea. They've been a godsend for me as well ;-) (coping with work, children, house, enabled me to exercise again etc)

I find that green tea also helps with some of the more chronic pain (it lowers pain levels for me from 5-8 to 3-7) - apparently intake of green tea inhibits the (over)growth of bloodvessels which in turn supply (blood for) the growth of endometrial lesions - wherever the lesions might be. Green tea is apparently a mild angiogenesis inhibitor but i do have to drink 2-3 cups/day ;-)

I still take the (usual) pain killers (codein effervecent, paracetamol) and NSAID (naproxen) daily/depending on flare up. I discovered that if I take a higher dosis of NSAID/naproxen (500mg) at a time/twice daily during flare ups rather than smaller doses during the day, the higher doses tend to get to grips with/decrease my body's inflammatory response better both on a daily level and over a longer period.

All the best, take care xx


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