Just diagnosed want to get pregnant

Hi there, I have just been diagnosed with severe endometriosis, which, after 6 months off work with severe pain and fatigue and multiple trips to hospital for assumed appendicitis, comes as quite a relief! I am just thankful to have a name to justify the pain with if that makes sense!?

Anyway, I got married in August....what a fun first 6 months of marriage :( and my husband and I are quite keen to start a family soon, I'm 27 and he is 30 so we feel we are at the right point to try to start a family.

The diagnosis has filled me with quite a bit of fear about not being able to get pregnant, I'm not seeing my consultant (who is amazing) for another 5 weeks, he came in after doing the diagnostic laparoscopy and although I was quite dozey at this point said he found a significant amount of endo and said he could see why I have been in so much pain...that's all the info we have at the moment, I'm sure he will go through options. But I was just wondering if anyone has advice about treatments and getting pregnant? Just feeling quite anxious about it all at the moment, 5 weeks feels like a lifetime away!

5 Replies

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  • Hi there,

    sorry to hear about your diagnosis. I got diagnosed with Endo in December 2013 after trying to conceive for over a year and after suffering with severe pain for almost 18 years!!

    It really depends if your fallopian tubes have been affected by the Endo. Basically you need to find out if your tubes are blocked or not.

    Mine are unfortunately blocked :-( so we got put onto the IVF waiting list and I have just been through my first cycle where I did get pregnant but lost the pregnancy just days later!

    There are ladies with Endometriosis that get pregnant and others like myself that need IVF and with IVF there is no guarantee that it works. But there is always hope.

    I really hope for you that you will get pregnant without any problems. There are lots of ladies on here that got pregnant and gave birth to healthy babies without too many problems.

    Good luck & all the best :-)

  • Hi

    The first thing is to ensure all the endo was excised and this should only have been done by a specialist in endometriosis and not a general gynaecologist. Check your consultant is on the list at:

    bsge.org.uk/ec-BSGE-accredi...

    My specialist was Mr Ashwini Trehan, who is generally accepted as the best. He specialises in restoring fertility in women with endo. Read his website as it gives some very useful information about endo.

    endometriosis-consultant.co.uk

    Regarding the pregnancy issue endo is actually rare on the uterus, ovaries and fallopian tubes. Infertility is much more likely caused buy a short luteal phase of the menstrual cycle. This is the second half between ovulation and the period - that is to say the time during which a fertilised egg would implant and become viable as a pregnancy. Although all women might vary slightly, the accepted minimum length of this luteal phase for a pregnancy to result is 10 days otherwise the egg is unlikely to implant. In a woman with a 'normal' 28 day cycle then the follicular phase (the first half when the follicle develops) and the luteal phase will both be around 14 days as nature intended. If a woman has a 24 day cycle and ovulates at say day 14 then she only has the critical 10 day luteal phase and should try getting pregnant asap. Women with endo are often found to have shorter cycles and thus shorter luteal phases which is the main factor causing infertility as women with endo get older.

    What you need to do is take some charge of this, which you can do. Firstly, if you don't already, keep a diary of the length of your cycles, marking day one as the first day of bleeding, and do this from now on. I don't know if you have a little ovulation pain mid cycle (I did) but buy ovulation tests and do the tests around mid cycle, perhaps from day 12, and establish what day you ovulate on. This will usually be fairly constant. Once this is established simply take this number from your total cycle length and you will know the length of your luteal phase. If what is left is over 10 days then infertility is less likely to result from this cause. Cycle lengths do vary in some women but if there is an overall shortening trend then this will be a warning sign of increased risk of infertility. If you do have over 10 days in the luteal phase and endo was not found on your tubes (or you have at least one viable one) then signs for pregnancy will look promising.

  • Hiya sorry to hear about you finding out about having endo :( but my story is I found to have extensive endo and got it removed and 11 weeks later I concived. You are most fetile after a lap. Fingers crossed for you 🙏xxx

  • Congratulations! I had my lap in dec and am TTC now - do you know how long you are more fertile for? And how quickly endo can reoccur? x

  • You have already had some great advice here - I just want to reassure you that your diagnosis will not necessarily prevent you getting pregnant. I was diagnosed in 2010 and I had my little boy in 2013. I fell pregnant really quickly (a couple of months after we started trying and the first month that I was tracking ovulation and used a sperm friendly lubricant - preseed).... so as long as you become very familiar with your cycle etc, there is hope! Good luck.

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