I don't know what to do next : Hi My name... - Endometriosis UK

Endometriosis UK

72,735 members53,172 posts

I don't know what to do next

Amyjancey profile image
3 Replies

Hi

My name is amy and I'm 22 . I got diagnosed with endo around 1 and a half years ago, since then i have had 3 operations all being laproscopy's to have the endo lazored off. I have tried a few things to get my endo under control . Contraception pills both I had to come off due to migraines . On my last op I has the coil fitted . This gave me bad side affects so I had to have it removed . After my op I feel the pain eases for a few months and now it's come back with a bang and I duno what I can do next . I am awaiting a appointment to see my gynecologist but I duno what suggestions there are left

It's running my life and job . When I have sex it's hurts and u bleed . Any advice I would appreciate

Thankyou Amy

Written by
Amyjancey profile image
Amyjancey
To view profiles and participate in discussions please or .
Read more about...
3 Replies
DaisyL profile image
DaisyL

Sorry to hear you're suffering! Have you tried prostap? I've had the injections for 10 months with hrt and they've been amazing x

I am running out of options as well. Estrogen based pills are VERY bad for me. My insurance won't cover the Lupron. So after my surgery I was put on the Depo Provera shot. I have been on it for nearly a year now. What a waste of time. It never helped with the pain, and all I do is bleed. :( So for birth control I will have to get my tube tied. For pain control.......I don't know yet. I am so tired of hurting nearly everyday.

Tina32 profile image
Tina32

Hi Amy, have you ever been referred to a endometriosis specialist rather than a gynaecologist? I know that excision surgery is supposed to be better than laser surgery as with laser it does not necessarily remove all the endo especially if it is deeper in the organ/tissue than the surface.

If you haven't it might be best to get a referral to a endo specialist to discuss your options further.

All the best

Not what you're looking for?

You may also like...

What do I do next ???

Hi I got diagnosed with endo before Christmas , I had a laparoscopy to remove the patches that I...
Jancey92 profile image

I don't know what to do next!

My Endo has gradually got worse and worse over the last 3 years. I used to be ill for maximum 3...
Caitlin profile image

Help, I don't know what to do next...

I really could do with some advice. I was diagnosed with stage 4 endo nearly 20 years ago, I'm now...
GreenF profile image

Don't know what to do?

As I've said before I had a lap in November and they said they burnt away my endo but im still in a...
paigeharger16 profile image

Don't know what to think anymore!

Hi everyone! I had my lap 4 weeks ago , the surgeon found endo on right ovary, behind left and...
Ollie1390 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.