I was diagnosed with endo in August after a lap which I had a cyst removed from one ovary and some endo removed but was stage 4 overall. The consultant said the ovaries and the tubes were intact but recommended a course of injections to down cycle.
I had my follow up last week back down in the midlands where I have moved to. The consultant I saw said I definitely need to down cycle using either injections or the combined pill. I'm going to go for the latter.
We are desperate to conceive so this was hard to swallow really, my cycles are regular, am definitely ovulating and pain is very much manageable and no where near as uncomfortable.
She also said that it was likely that I would be unable to conceive naturally and IVF would be my best shot. So need to be referred to a fertility clinic locally but the wait for treatment if eligible could be very long.
I feel utterly devastated for all sorts of reasons I think but just the shock has really got to me. My mood has plummeted, I'm very tearful and every pregnant person or child I see just hurts. It just seems so 'easy' for others to get pregnant.
I always knew there was something wrong with me and that it could make having children harder. I thought that because my ovaries and tubes were fine then I should be ok to conceive naturally.
There's no way I can afford private treatment so am at the mercy of NHS waiting lists.
I'm lucky that there is IVF as an option and will know more when I attend for the appointment but at the moment I'm just reeling and feeling very fragile.