When you don't think it could get any wor... - Endometriosis UK

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When you don't think it could get any worse....I am diagnosed with MS...

jayneeb3 profile image
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Hi all, hope you are pain free as possible. After nearly two years of having my ovary and tube removed and being told my endo is too bad to have a hysterectomy, and feel unwell since my op. I have been diagnosed with relapse and remission MS, does anyone else have endo and MS??

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jayneeb3 profile image
jayneeb3
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Brownlow profile image
Brownlow

Hi jayneeb3,

Sorry to hear about your MS diagnosis. I don't have MS but this article might be of interest

multiplesclerosis.elsevierr...

The writer believes that women with endo should be screened for early detection of MS.

Firstly, a hysterectomy is not always the answer. Secondly it sounds to me as though your case is beyond the skill of the doctor who told you that it's too bad to operate. Get yourself referred to an endo specialist. Find and choose one here bsge.org.uk/ec-BSGE-accredi... and tell your GP to refer you. They should be able to help sort out your endo and then you can concentrate on getting on top of your MS.

Best Wishes. x

jayneeb3 profile image
jayneeb3 in reply toBrownlow

Wow thank you, a very interesting read, l had wondered if there was a link, as both are auto immune diseases and oestrogen related. xxx

Brownlow profile image
Brownlow in reply tojayneeb3

My goodness! I didn't know that MS was oestrogen related. I suppose that explains why mostly women get it. Thanks for the info and good luck with your treatment. xx

jayneeb3 profile image
jayneeb3

Not proven but a link, menopause can make MS symptoms worse and been on prostrap and felt rough, had 3 month injection in Feb as well as 4 weekly previously, only just feeling human xx

jkoo4 profile image
jkoo4

I ha very removed at 21 , full hysterectomy st 29 .in now 47 . I have been unwell the last 7 years I have hypothyroidism ,hasimotoes and now MS .I have endo and neurologist . Your post is interesting to me . Thanks

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