Becoming pregnant with Endo

Not sure if this is the right place, but I have two children, one horn 2008 one 2010, this was before I was diagnosed with endo, I had no previous symptoms of endo before having my children. I did however have my daughter 4 weeks early, and had bleeding and severe head aches during pregnancy.

Anyway, I was diagnosed with endo in 2010 and also fibromyalgia this year. I would like another baby, but after having two operations for endo, I wondered about my genera fertility. And what problems can be presented with endo in pregnancy and even fibromyalgia.

Experiences welcome, please share...

Thanks you

4 Replies

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  • There are no problems in (that is to say during) a pregnancy if you have endo - pregnancy will do to endo what it does to the lining of the womb. They are the same cells.

    It thickens the menstrual lining that the cells are growing and that's it..it stays dormant and doesn't bleed a period until the pregnancy is over, and the body fires up again with hormones to restart you ovulating with the intention of you getting pregnant again. That's when the endo and the cells in the womb shed the lining and grow a fresh new one, becoming active once again.

    Endo causes problems with before getting pregnant, provided it or the scarring from it are on or around the ovaries or fallopian tubes causing a blockage preventing a released ova from reaching the uterus to be fertilised.

    Endo can be anywhere..it might not be presenting any threat whatsoever to your fertility. It is purely down to luck where it grows.

    The scarring and adhesions that can form from tissue which have been irritated by trapped endo blood falling on them can grow and grow and be a cause of infertility. these strands of super glue strong sticky ahdesions can cause ovaries to get stuck in the wrong place away from the fallopian tubes,or coated in a sticky cocoon which prevents ovas from escaping towards the fallopian tubes.

    Ovarian cysts can form on ovaries sometimes engulfing the ovary within the cyst again this blocks the ova getting on its way.

    Cysts can form on the opening fimbrals of the fallopian tubes blocking the entrance to the tubes.

    Hydrosalpinx is a fluid filled swelling of the fallopian tubes that causes them to block so ovas cannot get through to the uterus.

    Even if and of these events happens on one side. but not the other side you can still naturally conceive and get pregnant. When it happens on both then you cannot get pregnant with out assistance to by-pass whatever the blockages are.

    And IVF is the way to take the mature ova out of the ovary and re-implant it in the uterus (whether it is fertilised on the way in a dish is up to you).

    There are so many possible causes of probems getting pregnant, but endo need not be one of them. it is entirely your own luck whether your endo happens to have done damage at the ovaries or tubes instead of anywhere else that it can grow.

    The locations of your endo will have been noted when you had surgeries so ask to see your reports from the surgeon sent to your GP, in the first place, if they don't give much info, contact the surgeon and ask him to clarify what was found at the last op and whether your endo would in any way be likely to cause problems conceiving naturally.

    You can have extensive and severe endo disease all over the pelvic region, but still have clear ovaries and tubes. It's down to luck where your endo grows and what damage it does.

    One issue that can impact you during a pregnancy in terms of endo, is adhesions. these can form from any tummy trauma or surgery and are not just a by-product of endo by any means.

    Adhesions can stick organs together quite securely, and as the uterus expands with the growing baby this can stretch and strain the adhesions till they tear apart which can result in a rather painful few early months of pregnancy.

    For that reason, it is in a woman's best interest if she does have extensive adhesions, to have them cut back in an op before trying for a pregnancy. this frees up the uterus to expand a lot easier than would have been the case and should mean pregnancy growth is a lot less painful.

    As for fibromyalgia questions they are probably best posted on the fibro forum to get the best chances of reaching the widest fibro audience. If you are not yet a member there, then click on

    My Communities on the green bar at the top of this page, click Browse, then type in fibro in the search box and you will find the forum and can post on there.

    To know what your own situation is, will need you to be seeing your own case notes and asking the right questions of your surgeon. none of us can second guess where your endo is or was growing or what degree of scarring and adhesions you have or had prior to the op. Each of us is a unique case in terms of endo. No two endo ladies have identical development of the disease.

  • Thank you so much for your detailed reply, my current operation results were:

    Right parafimbrial cyst

    Uterovesical pouch endometriosis

    Left ovarian fossa endometriosis

    Thanks x

  • Well that is both sides.

    the fimbral cyst is a potential blockage of the right side, but if that was or is removed in a surgery then it may resolve the problem on the right.

    Uterovesical pouch is the pocket inbetween the uterus and the bladder and can be the start of badder endobut shouldn't impact fertility.

    Left ovarian fossa is threatening fertility on the left. the fossa is the inside edges of the hip bones not the ovaries themselves but where the ovaries sit.

    So that endo is not on the ovary - but it too close for comfort, and may cause adhesions to grow and envelope the ovary preventing an ova from escaping, so it has the potential to be a problem in the near future if it isn't already.

    it may still be possible to conceive naturally on either side if the cyst and the endo were removed in the recent surgery. Do give yourself longer to be successful not only because of the surgery but also you are older now too. Best of luck TTC don't wait too long, time is definitely against you in endo terms unfortunately.

  • I'm so pleased I found your post! I've had three children born 2007,2009 and 2012 and only started getting endo symptoms after my last baby. My GP is dismissing my symptoms as endo due to the fact that I've had kids! Although since my last baby my periods are far far worse with large clots and excruciating pain before, during and after them. I'm fatigued most of the time and have been told for the last 10 yrs that I have 'ibs' Does this sound similar to what you suffered before being diagnosed? Good luck for your next baby x

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