Anyone had endo removed a second time? - Endometriosis UK

Endometriosis UK

72,114 members52,731 posts

Anyone had endo removed a second time?

sarahmhayward profile image
2 Replies

I had stage three when i was 19 which was removed. then i had clomid to have my son who is 4 in sept, now at 27 it is back and completely taking over my life. i had the merina coil fitted in feb 13 and now my periods are literally constant with a few days break here and there. but it is affecting my bowels and back this time round and i am on morphine for the pain. its mentally and physically draining.

after lots of contact with my surgeons secretary, my surgeon has just emailed to the admissions so i can have my lap before July i really cant go on like i am. Im just wondering if anyone had it removed a second time of their experiences and are the recovery time similar to the first or longer etc.

Written by
sarahmhayward profile image
sarahmhayward
To view profiles and participate in discussions please or .
Read more about...
2 Replies
wp22 profile image
wp22

Hi sorry you are still suffering, I have had 3 excision ops and still have endo. I don't think I have too much but I definitely do have some. I have learnt over the time what symptoms seem to come from whereabouts it is but it's hard to pinpoint where the pain is coming from. I would put money on me still having it on my rectum and bladder. Personally I don't think it depends on how much you have done as to how well You recover as all mine were painful recoveries. Perhaps that's just me but i was up and about driving after 2 weeks with all of them. X

Unfortunately I've had Endo removed numerous times with laser and diathermy. I was diagnosed in 1991.

The only surgically procedure that I struggled to overcome was an emergency laparotomy. But all the laparoscopies were about the same recovery in relation to discomfort and recovery.

I am waiting to have my 8th surgery due to endometriosis. This time I am having to have an exploratory laparoscopy to see how badly my bowel is involved. I have asked to have a hysterectomy, so that will be more surgery!

I have been lucky and had three children.

Best of luck,

Barbara x

Not what you're looking for?

You may also like...

adhesions in mri - please help

hi everyone - I had an mri to assess whether or not to go ahead with a lap. I have recurrent...

hi sorry it’s me again … I’m worried about taking estrogel

hi there anyone had estrogel? I’m 31 and was I am currently on prostrap injections for...

can someone advice me on pros trap please

hi there I have been told to go on oristrao until I have my hysterectomy but they want to keep my...

Fatigue, Adenmyosis and Endometriosis

I was wondering what peoples experiences were with fatigue and Endo and Adeno. I have always been a...

Should I complain about doctor?

My sister saw one of the GPs at her surgery a few days ago because she believes she may have...