Hi there, I found this site after my mum mentioned endo to me and I need some help please!!
In early 2010 I started to get a sharp stitch pain in my lower right abdomen the first few days before and of my period. then one day it came on full force everyday. I went to the doctors every other day and was told it was nothing, even told that it was because I'm a single parent!! I fought all I could until I was rushed to hospital in OCT 2011. I had a lap, performed by a bowel surgeon I think. They only found a small cyst and a few adhesions, mainly from my bowel to c-sec scar I think.
I thought I was fixed!! I was pain free, until my period came and it was back. At first just before my periods now it's pretty constant. I have been to see gyne, the bowel surgeon and pain management, none of whom can tell me what is happening!
I was on marvellon for 3 months without a break and it did help, but my doctor stopped it. I tried 6months of zoladex injections, that helped the pain, but the side effects were far worse leaving me with lasting severe asthma. So that was stopped.
Now I am on: fentanyl patch, citalopram, mirtazipine and gabapentin.
I went to see the nurse practitioner the other day because for my last 2 periods since the zoladex, I have not been able to wear a tampon. It doubles the pain and it is excruciating. That's not right.
The nurse was nice and softly spoken but actually told me the pain is all in my head, it's all because of my depression and anxiety (which got much worse after my lap) she said I should think positive and push past the pain, now I'm a half full kinda girl but this pain would test the patience of a saint!
Since then I have noticed that my cervix is severely tilted again, much worse than before when my lap fixed it.
After seeing the nurse my mum happened to ring me and she had seen something about endo on this morning, and said it sounded like me. I have always had heavy and painful periods, I also have a history of reoccurring urine infections, abnormal smears as blood in my stools. Also both of my babies were prem due to complications on my side.
So that's what's led me here.
I have an appt with my gp on the 27th, i aim to go armed with info and ready to change doctors if he won't do anything.
So, sorry about the essay! My questions are: does this sound like endo to you? Any advice for the pain/medication? And also any help on changing an ignorant male doctors opinion? Or is this all in my head? Should I be asking for mental Health teams? I don't know how much more I can take, I feel that I am missing so much of my children through the pain and non stop tiredness. Any support would be much appreciated, and thank you ❤️