Endometriosis UK

In and out of hospital with chronic pain for 7 years, has anyone else had the same? I feel like giving up!

I'm new to all this, this is my first post. I've been in and out of hospital for 7 years with chronic stabbing pains in my right side of pelvis, it's agony. I take oxycodone to control pains at home when needed and im on microgynon back to back for about 5 years as periods, the few days both before and after periods are just too painful and when the pains get too painful, I start being sick with it and end up in hospital needing morphine and anti sickness through a cannula for a few days until the pains are under control again with oxycodone and I can go home. This can happen up to 6/7 times in a year.

I've had so many different tests and scans done, 2 laparoscopys, my appendix out and my right Fallopian tube removed ( as it was blocked and they thought might have been cause of pain ).

The hospital was about to give up and just help me learn to manage pain until the head of gyne said he wants to do a laparoscopy as he thinks it's definitely endometriosis, as I have all the symptoms of it, so now I'm just waiting to hear when the op will be.

I just don't understand why it has taken so long with so many trips to hospital for them to finally decide its endometriosis. It has taken over my life, I don't have a social life, it's getting in the way of my relationship, I struggle to look after my daughter who is only 9 months old, as I struggle to look after her with being in so much pain and keep going into to hospital. I also have bad depression and anxiety the last few months when the pains have just got worse and worse. I feel like giving up!!

1 Reply

Oh that sounds terrible! You should not be suffering like this. I know it's hard for most of us to do but I really think you need to kick up a fuss and make yourself heard. I recently read that endo takes on average 7 years to get properly diagnosed and what's happening to you looks like a classic example. I'd suggest the lap so they can take a look around and keep calling until you get an appointment. It sounds like your local health service are in no hurry to sort this out so you need to push until you get their attention. I have just read another post whereby someone said 'you sometimes need to be the squeaky door in order to get oiled' and I think that is so true for your situation. Good luck and don't be afraid to make a fuss! x


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