Blood test results......HELP PLEASE x

Hello ladies.

My endometriosis is taking hold. I am in pain most days, feel shattered and have cracked lips and mouth. ulcers. I can't be intimate with my husband and my children are also being affected.

[Bokkie]

Oh poor you. You are really not having a great time are you? I wish there WAS something I could do to help. You sound as though you have just about had enough now. It is so unfair. All I can do is say that I am sure that everyone on this forum will totally sympathise and understand from their own experiences what you are going through at the moment. I send you HUGE cyber hugs and hope and pray that something happens for you soon to alleviate your pain and discomfort. XXXXXX

[Hidden in reply to Bokkie]

Thank you Bookie.

How are things with you?

[Bokkie in reply to Hidden]

Not so good at the moment. Lots of pain and feel so exhausted. Thought I was going to pass out on the train home from work yesterday. Getting out of breath a lot too. Got a review at the docs next week so going to ask about the next step forward for me. I am so fed up and feel like I just pee everyone off at the home at the moment. They don't seem to have any patience or understanding....x

[Hidden in reply to Bokkie]

Oh bokkie, you are having a tough time too!

When I win the lottery I'm going to bye a massive house where we can all go to talk to each other. As We are the only ones that understand each other.

In my big house, David Beckham will be my personal assistant!

[Bokkie in reply to Hidden]

That sounds good to me! Just give me a shout and I will be there. I will bring Channing Tatum as my personal assistant though! ; ) x

[Impatient in reply to Bokkie]

And I'll be Channing's PA.

[Bokkie in reply to Impatient]

Remember to save some of him for me though if we are sharing him! ; ) x

[Sheri26]

How you feeling now, I don't know what to suggest to you really, what are the next steps for you??? Four weeks till my lap today, hopefully I will be better soon

[daffodil]

Sending you a big hug too! Am the same as you -I am in constant pain,which is only having the edge taken off by 8x dihydro,8x paracetamol and 9oomg gabapentin.I wonder if it is worth swallowing them all but if I miss a dose I am in so much pain I cant straighten up.Without the pills I wouldnt be able to get out of bed.Am waiting for "emergency" gynae appointment,having seen a general surgeon who wondered why I was refereed there lol but has at least actioned a CT scan.I am normally sleeping before midnight,but since last October have been up half the night with pain ,but at least have all you ladies here to have a moan to or hopefully help also!

Like you I am so fed up of pain -30yrs of endo pain( though until 2000 it was controlled and didn't impinge on life much).When I was last in hospital - burst cyst,endo flare and kidney infection- my GP had said that if they operated they may do a hysterectomy at same time,as gynae had said this would happen if had yet another cyst explosion.

What age are your children?Mines are older,so independent though still at home.My longterm illness -ME,Endo and Meningitis killed my marriage,so I pray that your husband is understanding of endo .Few folks realise the strain any long term illness can put on a relationship.But we ladies do....

Have you heard of the SHE TRUST - I used to be a member.It is an endo charity which is rather more complementary.I do remember they produced excellent booklets on how to explain endo to young children and also booklets about ways to approach intimacy when it is painful.

What did your blood tests show?

[Chrissie66]

I'm still too spaced out to be any good to anybody, but I'm sending huge hugs xxxx

[Hidden in reply to Chrissie66]

Hello Chrissie.

I've been thinking about you. How are thinks with you? How's the side effects of Zoledez?

Massive hugs.

Xx

[Chrissie66 in reply to Hidden]

I've still got mush for brains, and I'm still alternating between panicking, sleeping and sobbing. There is a sliver lining however, I am losing weight so yay!!

At least we know we're all in together xxxx

[Moff_cat]

*hugs* I used to get mouth ulcers a lot as a kid, dentist said it was a B12 deficiency took tablets daily for a month they all went away, might be worth a shot. Blistex ( or blistease they changed their name) is amazing for lips I'm outside doing so much in the winter that they crack a lot it's been my saviour. X x x