How long does it take for endo to come ba... - Endometriosis UK

Endometriosis UK

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How long does it take for endo to come back after it's been completely removed?

7 Replies

I'm not on any hormone treatment as ttc naturally until ivf!

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7 Replies
gemnicoler profile image
gemnicoler

Nobody knows! Mighy be tomorrow, might be 10 years and hopefully a good chance never!! Good luck:)

marple27 profile image
marple27

I think that gemnicoler is right- it depends on the severity of the case and whether they were able to fully remove it. But I have my fingers and toes crossed for you!

Thank you for your replies! I suppose time will tell. X

classiebird profile image
classiebird

If it's been excised and removed properly by an endo specialist then it will not come back.

If it's just been burned off it can grow back cos d "roots" will have been left behind.

Oh ok that's interesting! I know that they were trying to be careful so they could conserve as much ovary as possible for ivf. I'll need to ask next time I see them. All they said was that we removed it (cut) completely but not sure if that was it all really! Thanks for your help

Impatient profile image
Impatient

Well not quite true, deep endo which is burned back doesn't burn far enough, but for shallow surface endo the laser will do a good job.

However without us knowing all the ways endo can spread from the uterus - it can return by any number of means. Backflow of period blood along the fallopian tubes is a pretty strong candidate for spreading the cells, but that doesn't account for how endo can end up beyond the cavity around the uterus, so there is the theory of it transferring to new locations through the blood stream as well.

If you are still having periods, obviously that increases the chances of endo taking root again each time you have a period. But how quickly and at what locations is pure luck. It need not take root again anywhere that causes pain for many years, or it may hit a senstitive spot at any time. All that can be done is to minimise the risks of it spreading after you have had a thorough surgery to remove the already existing endo, and hope for the best.

There is no set time frame available. There never will be because each of us is unique in the way our endo develops and the locations it starts growing on.

Thank you for your replies. I'm really concerned that it will grow back by the time I'm due to get ivf. I wish I could just get a scan every so often to monitor any growth!

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