HI does anyone have advice have had endo ... - Endometriosis UK

Endometriosis UK

72,903 members53,260 posts

HI does anyone have advice have had endo since 2001. But I've noticed my hair is thinning and coming out in clumps. Any advice? Thanks

sazza_84 profile image
10 Replies
Written by
sazza_84 profile image
sazza_84
To view profiles and participate in discussions please or .
10 Replies
daffodil profile image
daffodil

Not a doctor but know that depo( progesterone) can cause hair loss.Mine doesn't come out in clumps but definitely sheds every time I wash hair and brush,more than before Depo jabs.Luckily I have thick hair,so you wouldnt notice.Underactive thyroid( very linked with endo) causes hair loss or even autoimmune disease or stress.Definitely see Gp and have some bloods done.Sending you bestwishes.

Impatient profile image
Impatient

What drugs are you on? All the GnRH drugs have hair loss as a side effect. I lost a good 3rd of my hair on zoladex. But after coming off the drug it grew back with a vengeance and now i have the opposite issue of too much hair growth. My eyebrows particularly are in super over drive.

If you are not on any meds or not recently been on any meds tht could cause this, then it could be stress related alopecia. Speak to your GP who can check your thyroid levels and hormone levels incase there is anything there that might be causing it.

My hairloss was not clumps it was general thinning out of head hair - strewn all over the house and everywhere else !!! and I lost all my pubic hair, under arm hair etc. But that did grow back.

Leese16 profile image
Leese16 in reply toImpatient

Hi ive just found this post desperately looking for someone else having this side effect. My hair has thinned all over but with patches. I am devastated. My gynae said it def wasnt zoladex related. Ibelieve they are so wrong. I am scared. How are you doing now

AllWeNeedIsluv profile image
AllWeNeedIsluv in reply toLeese16

I bet it's hormonal when your pregnant you have a good head of hair when youve given birth it all v comes falling out. I think it's to do with hormones. Synthetic or natural the way they fluctuate either way hormones have a lot to answer for xx

Leese16 profile image
Leese16 in reply toAllWeNeedIsluv

Thanks. I bloody hope so. I am so stressed x

AllWeNeedIsluv profile image
AllWeNeedIsluv in reply toLeese16

What have you tried to help it grow back? Xx

Leese16 profile image
Leese16 in reply toAllWeNeedIsluv

Im waiting to see what my gp says about my bloods. My whole scalp hurts too so im reluctant to put anything on it just yet. Ive started vtamins etc. Our gp is shit. they just speak to u on phone they see you after bloods. Might know a bit more on tuesday

X

AllWeNeedIsluv profile image
AllWeNeedIsluv in reply toLeese16

Bloody hell I think the vitamins etc is a good idea. I hope you get this sorted I can't imagine what your going through. Bless ya xx

Judan profile image
Judan

My hair has gone thin but I want on any medication, I am anaemic- have you have your iron checked ? Worth a try xxxxx

Leese16 profile image
Leese16 in reply toJudan

Im waiting on blood results. Its really getting to me. Thanks for your reply xx

Not what you're looking for?

You may also like...