I had my first diagnostic lap and mirena insertion on the 15th of October, almost 2 weeks ago. After the lap, the surgeon I saw didn't say much, that they had found some endo around the pouch of douglas but they didn't do anything with it as there was too much. I had a lot of adhesions some of which they dealt with, other they didn't due to various risks. That was the jist of what he said, no great detail and see you in 6 months.
I know I was still a bit woozy but I'm sure he didn't tell me much more than that!
I waited for my report to come back to the g.p and I expected it to be as brief as the surgeon had been and although I was surprised in that it does in fact give me much more detail, things that he never even mentioned! I find it a lot to take in.
I understand all of it, but what I don't understand is what it means for the future, looking forward? How will I ever be normal again if they can't/don't want to treat the endometriosis? I know that they need to wait and see if the mirena helps (which fingers crossed it will!) but if it is this bad now, how bad will it be in a few years?? My ovaries are fine now but what if they don't stay that way, is there any way of knowing?
Here's what the report said anyway...
Findings:
Adhesion band between uterine fundus and anterior abdominal wall. Also omental adhesions to umbilical area.
Extensive peritoneal endometriosis.
Normal tubes and Ovaries. (Thankfully!)
Endometriotic spots in both ovarian fossae, on uterosacrals and in Pouch of Douglas.
Mild obliteration of Pouch of Douglas.
Procedure:
Adhesion band between uterus and abdominal wall cut with bipolar diathermy restoring normal uterine anatomy.
Omental adhesions left intact.
Endometriosis not treated surgically as too extensive.
mirena coil inserted.
Final Diagnosis:
Extensive peritoneal endometriosis.
Omental adhesions to umbilical area. Hasson technique recommended for future laparoscopic entry.
Patient Follow-up: Mirena coil to control endometriosis, to be changed in 5 years time.
Might need GnRh analogues in the future.
I was hoping that some of you could shed some light or share your own diagnosis/story?
And how the hell can something be 'mildly obliterated'??
Or maybe I'm just completely overreacting and it sounds much worse than it is?
I would love for this to be the case and I do know there are so many ladies in much worse situations than mine, but I'm still scared.
It would be good to hear some personal stories.
Thanks for reading,
Tortuga
X