Endometriosis UK

Hello, New Here


I'm 33 married with three children. As a late teenager I started suffering with heavy periods, terrible pmt, migraines and pain. My GP at the time told me it was normal and prescribed evening primrose oil capsules. Forward on about twenty years and I decided that I'd like to lose weight + get healthier. So I started on the Couch to 5K programme but towards the end of it I started to get pain close to my caesarean scar so went to get checked out by the GP who decided I had a hernia. Had an operation for said hernia, no hernia found but a lump was removed. On Wednesday I discovered that the lump was endometriosis.

I have now been to the GP who suspects I probably have endometriosis elsewhere and has put me on the pill (I don't need contraception as hubby has had a vasectomy) to see how I go for 3 months. The other options was a balloon in the uterus to remove lining (?) or a hysterectomy. Not sure what is the best option for me. I want my terrible periods to be reduced, as soon as I wake up in the morning there's blood all over me and it runs down my legs as soon as I stand up. There are huge clots, pelvic pain, breast pain and I retain a lot of water.

Hope to hear from others.

2 Replies

Hi Auranya,

I am so sorry to hear about your diagnosis and suffering :-(

My main recommendation is to try and see a consultant with a special interest in endometriosis as there are many options - surgical, medical and alternative. It is your body and your choice and it's worth taking time to figure out what works best for you.

You can see details of surgeons with a special interest in endometriosis here: bsge.org.uk/endometriosis-c...

There are others who aren't listed here so it's worth asking other ladies if they can recommend anyone local to you.

Take care and I hope you find a way forward soon.



that sounds awful, I'm so sorry to hear how bad it has been. My advice (and I work for an organisation that tries to promote the NHS) is to always go private and see a specialist. I have had an awful experience in the NHS for anything gynae and they really only like to choose cost effective treatments, which 9 times out of 10 are not what is right for the patient. I have a wonderful consultant in the Birmingham area if this is any good for you?



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