Anyone get severe joint pain prior the bl... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Anyone get severe joint pain prior the bleeding, cold feet, hands extreme tiredness? I have had endo for 16years this has just started....

Tamara2 profile image
2 Replies

I have had endo for 16years, had 8 lap surgery, have removed one ovary and tube. Last surgery was 2months ago. I also have adenomyosis. This severe joint pain which I think is linked to post bleed started about six months ago but is crippling. I am 33. Thanks

Written by
Tamara2 profile image
Tamara2
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Penel profile image
Penel

Hi Tamara

I had endo many years ago and, like you, started having terrible joint pains. It turned out to be a reaction to gluten (coeliac disease). I don't know how common this is, but there does seem to be a possible link according to some research. ncbi.nlm.nih.gov/pubmed/233...

Good luck with getting some relief.

Tamara2 profile image
Tamara2 in reply to Penel

Thank you for responding I will mention this to the gp. x

You may also like...

I've just had my 5th injection of zoladex, I'm on Livial also. Has anyone else had joint pain?

infection or rheumatic pain? Has anyone else developed very painful joints after been on zoladex?

I have been diagnosed with endo,Does anyone else get a flare up with severe pelvis and abdominal pain? every 3months? been hospitalised time

Been diagnosed with endo since sep 2018, been hospitalised 7 times and put on pain relief to...

Does anyone have severe pelvic pain starting a few days after their period has ended? What is the cause?

I have severe pelvic pain that starts two or three days after my period ends. The pain is unbearable

Does or Has anyone ever had shoulder pain due to Endo?

Does or Has anyone ever had shoulder pain due to Endo? Its not a pain thats constant but when its...

Hey there, follwoing my 5th surgery 4 weeks ago, I have been told that i need to have a bowel resection and endo excison. Anyone had this?

I have been diagnosed for 9 yearsnow and just had my 5th surgery. In the last 16 months I have had 3