Hi, I got diagnosed with endometriosis as well as pcos a couple of years ago. I never got offered any advice or treatment

[katie81]

Is there anything i can take to stop the terrible pain i am in. It's making me feel very low and just don't know what to do

[Impatient]

Did you get diagnosed by a laparoscopy op and have the endo excised(cut out) or lasered back at that time?

Of was your diagnosis just from scans?

Are your pains all the time, or mainly when you are having a period?

If it is when you are having a period then that is the first thing to tackle to stop having periods. You can speak to your GP or local family planning clininc about various ways to stop your periods from happening every month.

some ladies take the pill back to back and have a period every 2-6 months depending on what suits them, as well as having strong prescription pain killers to cope when the period pains kick in.

I highly recommend the mirena coil - which does take a few months to work, but it should in most ladies stop the periods for up to 5 years without mess, expense of tampons, and pain killers. It was for me a very liberating experience not having to have all the discomfort expense and worry.

There are other implants and tablets to try too. If one doesn't suit then others to try.

If however you have got to the stage where the endo pain in pretty much constant then it is probably time for surgical intervention again. And to have work done to tackle the active endo lesions and possbly consider after that having hormone treatment to shut down the ovaries for a few months if you can stand that (plenty of grim side effects on that option!)

You should ask your GP to refer you to see a endo specialist gynaecologist with a view to having surgery on the endo. The waiting lists are LONG, so the sooner you get the ball rolling to get a referal the better.

You don't need to be suffering in pain constantly when there are so many options to try and give you back some quality of life. I am afraid to say that what with the NHS shortages, you do have to be proactive and fight your own corner.

They don;t follow you up as an endo partient, nor are they mind readers and you will have to make a nuisance of yourself with the GP surgery to get the treaments you deserve.

If you have an old fashioned GP who just fobs you off, then you will be best advised to find a new GP who is willing to help you. plenty do not help, but there are the odd few GPs who do care and are well aware of what endo can do painwise and will support you.

I've had good and dreadful and it's trial and error and luck to find a supportive Doc.

And don't neglect your mental health either. If th pains have put you in to a depressed state then please be careful with your mental health and if you need to have help coping mentally then anti-depressants for a few months can make such a huge improvement to your ability to cope.

good luck getting the help you need.

[katie81]

Thank you for answering my question. I had a laparoscopy and they said they lasered them. I used to just get the pain when I was having my period but getting pain most the time now. I was taken in hospital three times last month but they just gave me pain killers which didn't work for me. I will see the doctor again and hope they can help me this time.

[inspiredconceptions]

Most doctors only offer surgical intervention and hormones. But this does not "cure" endometriosis. Try seeing a homoeopath who can prescribe medications for your specific symptoms. I have had an experience of seeing two confirmed cases off endo resolve with suitable remedies. Worth trying. You have nothing to lose.

[classiebird]

Amitriptyline. First line for nerve pain take it every night and it causes drowsiness so helps with the insomnia. That doesn't work there are alternatives.

Like you i used to just be in agony on my period now its there all the time, yay!

Also take paracetamol four times a day whether you have pain or not. You can always ask for a referal to a pain clinic.

Problem with endo is there is no cure or any real treatments just things to aleviate the symptoms.