Ugh.

[LaurenBurton]

Had first GP appointment after rheumatologist diagnosed me with fibromyalgia and CFS. He said he hadn't received the letter but prescribed the amitryptyline. Told me to wean off the 30/500 cocodamol (which is doing next to nothing most days). But wouldn't give me tramadol or anything else for the pain until the amitryptaline kicks in. "Take ibuprofen" I do that anyway and it doesn't work. Plus I've got the toothache from hell! Seeing the dentist later (doctor and dentist on the same day to reduce the amount of time I feel anxious) but I doubt the tooth will be fixed today so I'm not stopping the painkillers now. Luckily I don't have to wean off the Mirtazapine which was a worry since they're both antidepressants. But I hurt all the time and it's really painful he wouldn't give me a letter to take to the job office to explain why I can't do certain jobs. He said "you're better off getting the job and then we'll see what we can do for help". So no basically. Don't think he even agreed with the rheumatologist that I had fibromyalgia in the first place. So frustrated

[cyberbarn]

I suppose in a way though the GP is right. Fibro is a diagnosis of exclusion, that is, if you have something else that could be causing the symptoms then it will be down to that rather than fibro, and as you are posting on the EDS forum I assume you have EDS?

I know its is frustrating but give it a week or two for the amitriptyline to work. My son is on it and it did take some time to work, and when they increased the dose a year later it worked even better.

I hope they sort the tooth out though, because the pain from that is different from the pain that the amitriptyline will help with.

[bendymum in reply to cyberbarn]

Can I ask what dose of amitriptyline your son has. I take it for migraine, @50mg per day but I don't feel it does anything for pain.

[cyberbarn in reply to bendymum]

My son is on less than half that. Amitriptyline doesn't work for everyone, so if it isn't working rather than taking more, it might be worth trying something else.

[LaurenBurton]

Actually I didn't realise I was still on the EDS page to be honest. Sorry! I thought I had it so I was on this page collecting information when the rheumatologist said it was fibromyalgia and chronic fatigue that was causing all of the newer symptoms and my already diagnosed Joint Hypermobility Syndrome causing the rest. It's stranger actually, even though I slept for 11.5 hours, I woke up feeling refreshed for the first time in years, I felt like I wanted to get out and do something and I was in next to no pain which is insane! I don't know but I have a lot of hope for this drug! Thanks x

[Country4eva]

I know ur frustration. I just had my pain management stopped. Got in big disagreement with medical professionals. They have no idea how we feel, how we hurt and they too are getting frustrated cause the government is telling them what to do. I have gone as much as 6 months at a time trying not take pain meds and I suffer. Once the withdrawal is over they say pain suppose get better. NOT!!!!! This is my body. Don't we have a choice in our treatment plan??????????