I was diagnosed with fibromyalgia in 2008. For the last year or more I've been putting the puzzle pieces together and am wondering if I have EDS hyper mobility. I can't stand for too long, my hips click as I walk and I can bend in most of the ways on the EDS chart. I mentioned it to my primary care doctor who recommended what he referred to as a great rheumatologist. I spent days writing and rewriting my symptoms to make it as short and clear as possible because I didn't want to waste the doctor's time. The doctor looked at me, my paper and said he would rather hear it from me! I almost started crying. Then he said he has no way to diagnose EDS because it requires a genetic test and that was that! He scheduled me for a bone density test and I later received an almost $500 bill from the doctor's office. Talk about wasted money! Does anyone have any ideas? I've wondered if it's worth getting tested but at times the pain is so bad and crippling that I think my body is dying and I'd like to know what's going on. Any help would be greatly appreciated.