Hello everyone, this is my first post and I'd just like a bit of advice please.
I went to see my dr last week as I'm struggling a lot with tiredness. When I say tiredness I mean that some days all I can manage is to have a bath. Even if I've slept all night I get up and feel just as tired as I did before bed and then fall asleep on the sofa by 10am and just doze until I have to collect the kids from school. I have hypermobility syndrome, restless leg syndrome, endometriosis and possible adenomyosis as well as bad IBS symptoms. I've had chronic back and pelvic pain for the last 5 years (since I had my son). Had two major pelvic infections which have left me with adhesions in my pelvis. I just don't know what to do any more.
My Aunt is a nurse and asked me over Christmas if I'd been diagnosed with ME? I knew a little about it but that's all, hence going to see the GP and asking him about it. He said "well some Dr's believe in ME and others don't"!!
I have an appointment with a pain management specialist at the end of the month and my gp has told me to take a list of my symptoms and hopefully these pain specialists will be able to help me with them......here are my symptoms...
-IBS which I'm struggling to find triggers for
-joint and muscle pain. My shoulder muscles burn after only doing the washing up!
-utter exhaustion, not made better by sleep
-arms and legs go numb when I'm in certain positions
-always had low blood pressure
-head rushes and feeling dizzy
-night sweats caused by the high doses of progesterone I have to take
-irritability and depression type symptoms
I'm really hoping this pain management will help but surely all they deal with is the pain? My gp seems to think that they'll put me on anti-depressants and all will be fine but I highly doubt that! I have two children, 7 and 5, to look after and my bf works away from home all week so I have my mum help me al the time which isn't fair on her as she's 68 now
I'm unable to work because of my symptoms and have been denied DLA and any other benefits as my bf earns too much. I'm having to rely on him completely for money which makes me feel even worse!
Any ideas people? Do these sound like ME symptoms? If so then how do I convince my Dr to give me the diagnosis?
Thanks for reading sorry about the length of my message xx