I am still in the process of working my way through the NHS, one department at a time, to get a firm diagnosis.
I have suffered from fatigue,muscle pains and weakness on and off over the past 10 years. My GP is very supportive and is doing every possible test he can think of. So far everything has been ruled out.
Things seem to get better at times then just when I am feeling better something knocks me back and I am flat out again.
Three years ago I was diagnosed with Atrial Flutter and Arythmia. This was treated with a ChryoAblation and even though the treatment was not completed it has reversed the Arythmia and controlled my heart rate. So at this point we thought it was not CFS afterall and things improved for over a year.
Following a short illness my CFS symptoms started to re-occurer. Though this time I was also suffering from breathlessness on exhurstion and chest pain. The cardiologist has ruled out this being caused by my heart. I have been through several pulmonary function tests on a couple of occasions with the respiritory consultant. Again the test are showing I am getting pain, and breathless but there is no particular cause. I have even had CT scans of both my heart and lungs that have been clear. Next stop waiting for the Neurology Appt.
As the GP keeps saying this is good news, however it doesn't stop the fact that I am still exhausted all the time, I have to sit down after getting dressed. Everything has to be planned around wether I think I can cope. I feel people at work think I am putting it on. I am able to work part time but I am getting pressure to be there full time. As there is no firm diagnosis its like the condition does not exist. I can feel myself "fading" as time goes through the morning. By time I reach lunch I cannot even talk. I had to as a colleague the other day for a word, I could see it and I knew what I wanted to say but it wouldn't come. She looked like me like I was stupid.
Any way back to my original question. Along with the bouts of fatigue, brain fog, and muscle weakness. I also find the I get a lot of chest pain and become breathless when I do things. This is worse when I am tired as all the symptoms seem to be.
Has any one else experienced this?
Thanks for listening