Hi all, this may sound a little strange coming from someone who's been ill for 2 years, but to be honest I was sure back in November 2010 that I'd be better in a few weeks, and as time has gone on it's taken me a while to accept that this is as good as it gets for now at least. I know all the usual ME symptoms (it was reading up on them that made me realise I had ME in the first place!) but please, can anyone help me feel less insane and isolated?
Firstly, did anyone else's GP spend MONTHS trying to convince them they were just stressed and/or depressed? I had to fight with mine for over 5 months before he accepted this; it got so bad that he was causing migraines whenever I so much as thought about going to see him, never mind actually crossing the surgery threshold!
Secondly, I have ended up on an absolute raft of medication for various symptoms. I've had asthma since I was 8 so have always had inhalers, but it seems to have got so much worse over the last 2 years. Now I also have digestion problems which I have to take a Proton Pump Inhibitor for, horrific migraines which I need a preventative for as well as something to take when I get an attack, a tricyclic antidepressant for neuralgia, co-codamol for muscle pain which quite often feels like someone is shredding my muscles from inside my body, sinus problems, allergies, semi-permanent nausea (for which I have Buccastem) and chronic dizziness. Does anyone else feel like this? I have small children and quite honestly every day is an effort to drag myself through, because of course they need cooking for and cleaning up after, and I need to do the school and nursery runs.
I just really am hoping for someone to understand where I'm coming from. I try not to talk about it too much to friends and family, because I don't think they need to hear me go on all the time about how bad I feel! But as a result I do feel a bit lost with it all.
Thanks for any help anyone can offer.
Hi
Sorry to be the bearer of bad tidings but unfortunately what you are having is normal for ME. all I can say is there are lots of us here so do write if you need any help we are only to pleased as it is something we can do
I was in hospital because of the exhaustion and temperature rises I was having after months of the doctor trying different drugs to help and I was actually diagnosed by a doctor who was visiting another patient and he looked at my notes and spoke to the staff and they then made my diagnosis. and they let me out then as they said there was nothing they could do it was ME.
Do not knock yourself, I know I could not cope with running a family as you do. when my ME was diagnose my children were in their teens so they did help where I was unable to.and eventually after a while I was able to go back to work but it never really leaves you i am afraid.
Kindest regards
Terry