Hi I'm I'm 14 and for two months now I have been suffering extreme tiredness, tests, blood test, scans have been done and they all come back negative. I also have other symptoms pins and needles in arms and legs, joint pain in leg and knees, constant dim headache and bad headaches, nausea and feeling faint, I started back atschool this week but couldn't do it, I can't concentrate, or think and socialising is so hard, the school is sorting out half days for me. I'm sleeping around 16 hours a day. sometimes i just find it hard to eat caus it's so tiring. I just need someone to talk to who understands. I'm still waiting to get diagonesed with m.e. Sorry for going on hope someone can help so u don't feel alone.
Hey Megan, I'm so sorry to read about how unwell you've been feeling.
I got my diagnosis around 4 years ago after over 10 years of symptoms and tests with no answers.
Half days seem like a good place to start so you can bank your energy a bit and a diagnosis will hopefully help your school understand how to support you with your education.
I think it's great you've reached out to the community, it's really useful to find some people who really 'get it'. Hang in there.
Thanks it's getting quite frustrating for me as I'm ussally really enhetic and sporty and alway on the go and doing stuff with friends. Has they been any treatment that has helped you? My parents think it's m.e so we're trying to get a diagnoses. Hopefully the half days will be good and really help. What have been your experiences with m.e? My parents try to understand but I've Been taking my anger out on them. Thanks
Hi Megan, i can relate to what your saying, mine hit after glandular fever in my early twenties. Stopped me working for a number of years.
My doctor told me to take exercise, good nutrition, lots of natural whole foods and bank energy. That means being choosey about activities. We just can't do everything. I found I had a number of food intolerances which were affecting digestion and immune response.
Exercise wise that wasn't easy, fatigue is a battle and body gets sore but it definitely helped. Physically and emotionally and psychologically - I used to be super fit and healthy..I didn't recognise that myself after a few years with m.e but building exercise back into life was a big turning point. Started off with wallking around the block and built from there and it was some days 1 forward and 2 back. If I got a cold it was back to square 1 but I am a determined stubborn sort.
I will say it's very important to wait for your diagnosis and work with doctor specifically for where you are at with your illness. It sounds very acute for yourself at the moment and for some people with m.e exercise seems to make their symptoms significantly worse so try and be as patient as you can while you wait on results. Hopefully you'll have access to a specialist who can steer you in right direction.
I take things 1 day at a time. Sometimes I feel okish, other days rough, some days more energy, some days I struggle all day at work then have to come home and go to bed. My weekends are usually kept light so I can recover. It's a journey and as you get to understand the condition you will find out what works for you and your body.
I can totally understand you feeling angry. Just try to remember mom and dad will be very worried and desperate to help you so keep sharing your thoughts and experiences with them.