Hi. I've just been diagnosed by my GP after 12 months of being very ill, could barely walk at beginning of illness. I've had tests, scans etc to rule out other illnesses. Good to have a diagnosis at last, however it's left me feeling really confused and weird about it all. Although all my symptons and the way they present point to ME/CFS, some things just don't seem to add up.
My Mum has been ill as well, but for 2 months longer than me and we have some similar symptons. Her GP has said its stress and viruses. Also, two of my children, age 12 and 16, have been ill for the last 3 months with severe fatigue and other symptoms that seem to overlap with mine. They have missed so much school and are now struggling trying to do half days. The 16 year old is trying really hard to complete GCSE work as well. They have been referred to a paediatric CFS specialist and have their appts in 10 days.
Thing is, would me and the children really all have ME/CFS at the same time, given that it's not contagious?! Or have we all had a virus that's caused it?
I was convinced that we all had glandular fever but several doctors have all said its not that.
What do you think?