Hi All

[kerry09]

Hi all,

Im Kerry, 28 and have had ME/CFS since I was about 10 years old. only got diagnosed finally when I was around 15/16 after being told it was all in my head.

For me my symtoms mainly are feeling sick all the time to the point I could sit in the toilet all day but never actually sick, IBS, tiredness, aches and pains, flu like symptoms, brain fog and few more.

Mostly I have learnt to control and ignore a lot of my symptom, I do not suffer as much as some as I am able to work full time but this does mean when I get home I crash ! Also because of the fact I can wash and dress myself and hold down a full time job I get very little help and support from anyone apart from family and friends of course.

Sometimes I feel like I'm all alone because although I look and act fine I'm actually really not at all! the symptoms I get everyday some days worse than others but I never let it tell as I don't want work colleagues and even family sometimes feel sorry for or they may think 'oh she's feeling ill AGAIN!!! ' it's hard to explain but I guess you guys will know the feeling.

love to all

[lovenothate]

Hi Kerry,

I’m so sorry you’re going through all of this. I just wanted to comment on one aspect of your post. The feeling sick all the time. I struggled with nausea constantly for several years. The Dr prescribed ‘metoclopromide’ which didn’t really help much but I still persevered for years.

Then, suddenly, I found a different medication for the nausea which has been amazing for me. ‘Cyclizine’.

It’s easy for people to underestimate just how debilitating it can be to be constantly feeling sick. The only thing people may be able to relate it to is if they’ve had any experience of morning sickness at some point. But, believe me, I know how awful it is. Cyclizine completely changed things for me.

Just thought it was worth a mention to you, as it might be a medication you could try mentioning to your GP.

Sending you all good wishes,

Will 🙂

[kerry09 in reply to lovenothate]

Thank you.

I may just have to look that up n ask the GP

x

[ALKT]

pushing yourself through your symptoms everyday could lead to a very serious crash that may permanently reduce your present level of functioning . there is some information on pacing that may help you please check out phoenix rising site .where you can find a lot of up to date info on m.e. best wishes.

[tobby1428]

hi Kerry! very sorry to hear about all your problems,you are a fighter and seem very determined to struggle on despite all your health issues.as long as you can tell us at healthunlocked you will never be alone!i was totally paralysed and on a ventilator for over a year,i was told the nearest thing they could diagnose me with was guillane barre syndrome,even though i had one to one nursing and my beloved wife and very young children were never far away,i still felt very lonely and isolated.my life now is very hard but i am determined to go on as you are!!! do not be afraid to cry,i cry,sometimes if you need help do not be afraid to ask.people who know and love you will understand. take care...god bless!!!!