Kidney community missing: I do not seem to... - Early CKD Support

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Kidney community missing

lowraind profile image
14 Replies

I do not seem to be receiving kidney messages. Is this a problem or are people just not posting as much?

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lowraind profile image
lowraind
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14 Replies
Bassetmommer profile image
Bassetmommer

I am not getting many either. I think people are not posting because I did get your post.

rabbit01 profile image
rabbit01

Yes it does seem to be quieter than normal.

Bet117 profile image
Bet117

Hi lowraind,

Hope that you are well and staying safe.

I think that between the pandemic and preparing for a different observance of the traditional holidays that members have posted less as the focus is on other things.

We all are happy to hear from you.

Take good care and continue to log in and watch the news feeds.

B..

lowraind profile image
lowraind in reply toBet117

I am glad to hear from Bassetmommer, rabbit01 and Bet117. The pandemic and holidays do not seem to have affected a change in the Lupus postings. That is why I wondered where the Kidney community was.

Bet117 profile image
Bet117 in reply tolowraind

Glad you reached out. Also they have just added a new community " About coping in these times" Can't remember the exact title but if you go to the home page you should see it.

Feel free to reach out to any of us at anytime; we will always reach back.

Be safe!

Thinking of you!

Bet

lowraind profile image
lowraind in reply toBet117

I saw the new community and followed it for a while, but found it a bit too maudlin for me. I also get posts from the lupus community, but the kidney community helped me so much when I was first diagnosed, and I value this community most.

Bet117 profile image
Bet117 in reply tolowraind

You know, I found the same thing, but I thought that I would put it out to you.

We are a forum but also a group of friends. Reach out!

Stay safe in these uncertain times..my thoughts are with you.

B..

WYOAnne profile image
WYOAnne

Yes, I know what you mean. We are all home, you would expect a lot more posts, not fewer.

Take care and stay safe!

lowraind profile image
lowraind in reply toWYOAnne

You, too. Thanks!

orangecity41 profile image
orangecity41

I noticed same thing and thought something wrong with web site, but it is different times this Holy Days season. Glad to see people messaging now.

KatieRL profile image
KatieRL

I know exactly what you mean - have you tried joining the Kidney Care UK community or NKF community on FB? I’ve found them so helpful and all the questions relate to renal issues, wherever you are on that journey.

lowraind profile image
lowraind

No, I have not joined either, but will give them a try.

Sammi_n_Munk profile image
Sammi_n_Munk

Hi lowraind! Yeah, I was somewhat wondering the same thing. I do still get notices, but not many anymore, it seems. Not sure. I know just the other day Bassetmommer was also asking everyone how they’ve been lately, so maybe we’re not the only ones who are noticing this. It’s very possible that many on this forum are just so concerned about this crisis the world is facing, that they’re too busy wiping everything in their houses down with disinfectant wipes, and they just don’t have as much time to post anymore! Lol!

I hope everyone is doing well and keeping themselves as healthy as possible. All my best to everyone here! God bless. 🙏😊👍

KatieRL profile image
KatieRL

You should try the Kidney Care FB group - I found this and the NKF FB group invaluable.

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