My 28 year year old son had a bad throat & ear infection at the beginning of April. Antiobiotics sorted out the infection but he continued to feel very poorly. After a blood test his GP sent him straight to A&E with a creatinine level of 190 & egfr of 37. He was admitted & given IV fluid for dehydration & referred to the renal clinic.
To cut a long story short his creatinine remains between 180-190, a kidney scan didn't show anything & he is booked in for a biopsy next Wednesday
The most worrying thing is how Ill he has been, since this time.
Exhausted & sleeps a lot
Nausea almost constantly (he has vomited a handful of times, which is always violent)
Headache - this is one of my main worries. It changes all the time, a few weeks ago he had stabbing pains all over his head which would developed into a searing pain which would last for a few mins each time. It's still always in the background but has now become a pain in the back of the neck (mostly on the left side) which creates a bad headache where he needs to lay down in a dark room. He has a problem with bright light, so we spend most of our day with the curtains shut so it's comfortable for him.
Tender scalp & forehed - this can be severe where he can't even bear his head on a pillow.
Loss of appetite - he has always been obese but it is now a struggle for him to eat, although he does force himself at least twice a day & sometimes manages a slice of toast at lunchtime too.
The most recent development is a tremor in his hands, it was just occasional a couple of weeks ago but has now become almost constant.
He does seem to have got slightly better over the last few days but I think that is partly because neither he or I can remember him healthy. Any energy used he goes pale, feels faint, breathless & has to sit down.
We keep being told his creatinine level isn't high enough to give him symptoms, so it's all a frustrating mystery at the moment.
As he is epileptic he has had a brain scan & MRI, both didn't show anything.
As he lives in London I had to bring him home with me mid April, as he's not able to look after himself at the mo. The journey to & from London (approx 2 hours) is almost unmanageable & we've had to stay overnight for the last few times as it makes him so poorly. All blood tests have been negative/normal except for the creatinine, so the consultants are scratching there heads! They did think it was AKI but as the creatinine remains stable they are considering CKD (although a blood test 2 years ago showed normal levels)
Apologies for the long post, I'm not expecting anyone to give me answers but I hope you understand when I say I had to get it off my chest!
Thank you for listening & if anyone does have any suggestions I would be very greatful.