FSGS2: I went to my doctor on Tuesday and... - Early CKD Support

Early CKD Support

7,985 members2,746 posts

FSGS2

Chelsae123 profile image
2 Replies

I went to my doctor on Tuesday and was diagnosed with FSGS2 and unfortunately there is no cure. They are starting me on a medicine with should help with the blood pressure and protienura. They will not do a biopsy because of the great risk. Medicine is my treatment for now. 

Written by
Chelsae123 profile image
Chelsae123
To view profiles and participate in discussions please or .
Read more about...
2 Replies
rabbit01 profile image
rabbit01

Sorry to hear that. I am at 18% EGFR and they suspected that I had some sort of FSGS but could not confirm it with out a biopsy which the doctor (and me) did not want to have done due to higher risk of bleeding. Unlike you I am not on any medication. I hope they can get you levels stable. Best of luck.

Nicolala profile image
Nicolala

Hi , I just commented on another of your posts. I won't repeat it all, except to say I was diagnosed with FSGS at 17, there is no cure unfortunately and sadly it often recurs in transplanted kidneys. Please message me if you want to ask any other questions- I'm more than happy to help if I can. x

You may also like...

Focal Segmental Glomerular Sclerosis (FSGS)

Hey Everyone I had a biopsy about a week ago and I was diagnosed with this FSGS disease. If anyone

Need Help to get proper diet for High Creatinine Patient

out with tablets and medicine please help me , to get proper diet , as of now she is having...

Please give me advice :(

sometimes foamy pee protein n blood in my urine (says dipstick) is confused help :(

age 27 GFR rate 66 , diagnosed CKD STAGE 2 by my doctor, am I ruined?

days ago my doctor and I couldnt believe at such a young age GFR only at 66 and diagnosed CKD stage...

All kidney tests normal EXCEPT albumin/ creatinine ratio

Haven't posted in while. My duff went up from 40 to 70!! But now test just came back that my...