Related to Dystonia?: I have suffered from... - Dystonia Society

Dystonia Society

601 members202 posts

Related to Dystonia?

loopss profile image
6 Replies

I have suffered from Fixed Functional Dystonia for probably about 5/6 years, and before that many other health problems. At current I get intense pains in my stomach which topple me over and sometimes make me unable to do much else. It appears like a lump (drs originally thought in my ovary) on my left side. This often makes me sick and can make me faint with the pain. Does anyone else with forms of Dystonia have anything like this?

Written by
loopss profile image
loopss
To view profiles and participate in discussions please or .
Read more about...
6 Replies
tid1 profile image
tid1

I have dystonia, but not your symptoms. So I have been doing some research and wonder if some of my muscle cramps and other symptoms are caused by artificial sweeteners - especially Splenda (Sucralose). Knowing that Splenda can cause major digestive problems, I am wondering if this could be your cause too. I don't know how accurate this list is, but if you use Splenda or NutraSweet (aspartame) you might want to check this out:

msreversed.com/splendareact...

If you are concerned about these sweeteners or any other foods causing your symptoms, you can do a challenge diet. Eliminate the food from your diet for 2 weeks. Then consume a lot of it in one day to see if the symptoms get worse.

loopss profile image
loopss in reply to tid1

Hi, Tid,

I dont tend to eat much with sweetners in, but its interesting to hear that people are finding different triggers. I will watch out for that one.

tid1 profile image
tid1 in reply to loopss

Have you tried taking Magnesium? I was getting dystonia in one foot, and severe leg cramps at night. I now take Magnesium Citrate before bed and it helps a lot. I take two 250mg capsules. Start with one as it is a natural laxative and muscle relaxant. Magnesium Citrate is a little more expensive than some other forms of Magnesium, but it is absorbed better.

I also occasionally take one of two different prescription muscle relaxants if I need more help:

Daytime - Cyclobenzaprine 10 mg

Night time - Methocarbamol 750mg

loopss profile image
loopss in reply to tid1

Oh ok thats interesting, I'll look into that. Thanks for your help

loopss profile image
loopss in reply to tid1

Sorry I forgot to add does your dystonia affect your stomach? As im not even aware if its a thing.

tid1 profile image
tid1 in reply to loopss

No I don't have stomach problems and don't know if this is a dystonia symptom. Mostly just left foot and lately fingers on left hand are sometimes very stiff when I first wake up.

You may also like...

Dopa-Responsive Dystonia

what it's like to have Dystonia and the fatigue that comes with it. As I don't know anyone else...

Help with Cervical Dystonia please

other medications are used to treat Dystonia? What else can I try?

Trial for dopamine- responsive Dystonia?

joke! She simply stated I don't have Dystonia & refered me to pain management. Not going. I went...

Coping with dystonia

Does anyone out there have dystonia in both legs as feeling really frustrated and feel I'm letting...

Recently diagnosed Dystonia

diagnosed with dystonia - it affects my neck & I have chronic head pain/jaw pain & ear...