Hi everyone, I'm new have suffered with Dopa-Responsive Dystonia for 5yrs after 200 blood tests and being told it's in my head while I'm spasming away for up to 24hrs on & off and also have wear and tear of the cervix of the neck, plus various disabilities.
It would be nice to chat with the community whom understand what it's like to have Dystonia and the fatigue that comes with it. As I don't know anyone else with Dystonia and most people have never heard of it.