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Diabetes Research & Wellness Foundation
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Horrible Sensor! :-(

Wow! What a weird and horrible sensor I had ended up using since Monday (4-15-19). That sensor had to be replaced today because it failed on its own this morning after I was on the computer and phone. Right now, I'm waiting on the warm-up period to be done so I can calibrate the sensor that I put in after getting off the phone earlier.

The old sensor that had failed was causing so many problems since Friday during the day and even before going to bed. The way it went goes like this: give a number for a few seconds then goes away for 1-2 hours with nothing; give a number then ask to be recalibrated, but doesn't allow the calibration to be entered; shows question marks and hourglass with and without a blood drop icon; gives a number and it's 300+ off! :-( This was how things have been going ever since Friday. I was woken up this morning around 2 am and was told that my number was 188 with two arrows straight down-- not true. I tested myself and was actually 277, but couldn't do anything about it because you can't calibrate with straight up or down arrows.

The new sensor I asked for will be here in a few days this coming week.

Lunch time here.

18 Replies
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Very sorry to hear of this. Your life is in the hands of this device and this is not good enough! Hoping your new sensor is better. Hoping you don't wait too long for a replacement. This causes great anxiety!

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So far, the new sensor is giving numbers after calibrating it twice to start it up. Since it's Passover, there was a few items we don't usually eat at meals, but we did today. The numbers will come back down soon. :-)

I will post again soon if anything comes up. Thanks for the reply, lfn1.

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Hope its better this time!!

Miles

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Thank you! I hope so, too!😀

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Oh dear that is not good. It puts me off buying one of these monitoring system. I've been thinking about buying a Freestyle Libre but they're so expensive over here in the UK and I cannot afford it really. I keep having hypos but my GP surgery won't provide me with one so I have to rely on test strips instead which, are not good when you're having a morning hypo and cannot use the equipment properly because you have the shakes and cannot even get up out of bed.

I hope you have some better luck with the new sensor.

TT x.

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You can talk to your doctor and explain to them why it's important to get a CGM. Once you can get it, you can set the alarms to go off before you get too low. Mine is set at 80 mg/dl so I can have a snack and test on my own without going lower too fast.

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I wish I could but everything is about cost on the NHS and they won't do the genetic testing to confirm that I'm a type 1 diabetic. They seem to think that because of my age it must be type 2 but they won't factor in that I had thyroid cancer and that women with type 1 are most at risk of thyroid cancer. The surgeon that removed my cancer said it was all linked and that the cancer should have been picked up when my GP thought I was type 2 diabetic. I might have to get my own CGM when I've got some money to spare because I've had some more hypos, and they're becoming more frequent.

TT x.

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Thank you for letting us know. If cancer is a link, talk to your doctor and ask them for a lab request for testing for type 1 Diabetes.

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I did but they refused. It's like hitting your head against a brick wall because everything is dominated by cost on the NHS.

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Do they know how many lows you are having lately?

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Hi, I had 4 morning hypos in 1 week but diabetic nurse refused to help.

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Can you try to get a new doctor/nurse?

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I need to be referred to the diabetes centre at my local hospital but the diabetes nurse refuses probably because of cost. I will have to try and sort something out but I'm just a bit busy at the moment. I've been nursing my uncle for the past 6 weeks since he had a heart attack and he has just passed away this afternoon.

I need to go now and try to get some sleep because I've been awake now for nearly 2 days.

Night, night and God bless xx.

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Oh no! I’m so sorry to hear about your Uncle.😫 Please get some rest and we will talk later when you’re ready.

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Please Take care and always reconfirm your readings by Glucometer to be on safer side !

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Thank you for that one. I do testing with my test kit when I’m not sure if the CGM is accurate and/or I have to do a calibration at a certain time.😀👍

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Ohh

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The new sensor is working so far.😀

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