January 15th Meeting Time(s): Our January... - Diabetes India

Diabetes India

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January 15th Meeting Time(s)

Activity2004 profile image
Activity2004Administrator
151 Replies

Our January Meeting/Discussion is going to be on Sunday, January 15th at 10 am USA time/8:30 pm India time. I will have a few updated issues we need to discuss that isn't on the agenda right now. Last minute updates.

See you at the meeting!

Activity2004

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Activity2004 profile image
Activity2004
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151 Replies
alwaysoptimistic profile image
alwaysoptimistic

Waiting for 8:30pm!

12 hours to go!!

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

I will be there! Don't worry!😀👍

Sk45 profile image
Sk45 in reply toActivity2004

Can't wait. Just hope I remember. maybe should set my alarm. Malaysian time hahaha.....

Activity2004 profile image
Activity2004Administrator in reply toSk45

If you're not there, someone will remind you!😀

Sk45 profile image
Sk45 in reply toActivity2004

Ok cool thanks 🙏

smshah profile image
smshah

How I can join the meeting?

I am staying at Ahmedabad, Gujarat .

Activity2004 profile image
Activity2004Administrator in reply tosmshah

Log on to HU and post comments here!😀👍

suryakaizen profile image
suryakaizen

Thank God, I had thought I missed the meeting. Will wait to see what 8.30 pm brings!

Activity2004 profile image
Activity2004Administrator in reply tosuryakaizen

We'll see you later today!😀 There's a lot of things that will be talked about during the meeting.

Sk45 profile image
Sk45 in reply toActivity2004

A little sleepy lol

But can't wait.

Activity2004 profile image
Activity2004Administrator

Is everyone ready for the meeting?

Activity2004 profile image
Activity2004Administrator

Starting in a few minutes.

Sk45 profile image
Sk45

Ok

Activity2004 profile image
Activity2004Administrator

Welcome to the meeting!

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

Thank you,Admin!

Activity2004 profile image
Activity2004Administrator

To start, we have a new Admin. and it is cure! nbreight is no longer going to be the second Admin for the DI group. cure and I both will be here and at DRWF if you need us for anything.

bhanjois72 profile image
bhanjois72 in reply toActivity2004

why this change?what happened to NBright?

cure profile image
cureAdministrator

Thank you Activity2004

May I request all other members who are online to send a small posting to confirm presence plz

cure profile image
cureAdministrator in reply tocure

Thank you Activity2004 to entrust this responsibility....

be sure I will deliver my best..

Sk45 profile image
Sk45 in reply tocure

Hi sk45 here

Activity2004 profile image
Activity2004Administrator in reply toSk45

Great!

cure profile image
cureAdministrator in reply toSk45

Great to see you here Sk45

Thank you very much.... request to contribute your thoughts...

Activity2004 profile image
Activity2004Administrator

Does anyone have questions about this before we say/do anything else?

Sk45 profile image
Sk45 in reply toActivity2004

Nope

Sk45 profile image
Sk45 in reply toSk45

Sorry to interrupt but what is mostly discussed in this meetings. I mean obviously regarding diabetes

Could give me an idea though.

cure profile image
cureAdministrator

@anup ji... you are most senior member here with largest following..... request to contribute your thoughts plz

Activity2004 profile image
Activity2004Administrator

Second thing, we have a New Members List for the Pin Post section. If you haven't already, please take a look at the updates that have been made and also follow the posting so you know when we have a new member joining so you can welcome them.

cure profile image
cureAdministrator in reply toActivity2004

Yes that is really great initiative taken by admin... I think this is happening first time in Diabetes India.

Sure we should welcome member so he will be free to share his/her experience and his/her issues.

gphilip profile image
gphilip in reply toActivity2004

Very good...

cure profile image
cureAdministrator

Hidden and shrisamarth ji.... request to contribute your thoughts....

Activity2004 profile image
Activity2004Administrator

It wasn't working out with nbreight. I had to make the best choice for the group and its interest. Since cure is already an Admin. on DRWF (like me), he can do all the same duties that I'm doing for you, too. No change except people. We will always have 2 Admin. at all times. If someone isn't around, I will get a sub. for everyone to help.

suramo profile image
suramoStar in reply toActivity2004

Activity2004

What is DRWF ? Sorry i'm not conversant with abbreviations.

Activity2004 profile image
Activity2004Administrator in reply tosuramo

Diabetes Research and Wellness Foundation group on HU.

suramo profile image
suramoStar in reply toActivity2004

Activity2004

Ya. I found from net. Thanks.

alwaysoptimistic profile image
alwaysoptimistic in reply tosuramo

healthunlocked.com/drwfdiab...

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

Thank you, alwaysoptimistic !

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

My pleasure,Admin!

Activity2004 profile image
Activity2004Administrator in reply tosuramo

Do you want to join? Everyone can if they want, but you need to click on the group's Follow button they have on the right hand side of the screen at the top and a green checkmark will show up if you click follow. Lots of friendly members are there.

cure profile image
cureAdministrator

Sk45

This meeting would help admin to understand issues faced by the members... and find out solutions....

gphilip profile image
gphilip

Yes, very much here and like this concept...

Activity2004 profile image
Activity2004Administrator in reply togphilip

Glad to see you.

cure profile image
cureAdministrator in reply toActivity2004

Great to see you gphilip sir....

cure profile image
cureAdministrator

alwaysoptimistic

can you share your thoughts.... plz??

alwaysoptimistic profile image
alwaysoptimistic in reply tocure

Yes!Why not,Admin?

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

Why did it not work out with nbreight?

Activity2004 profile image
Activity2004Administrator in reply toActivity2004

There were too many issues and it made it harder to concentrate on what was needed to be done.

cure profile image
cureAdministrator in reply toalwaysoptimistic

hey.... I am still cure... :)

alwaysoptimistic profile image
alwaysoptimistic in reply tocure

There must be respect for designation!

cure profile image
cureAdministrator in reply toalwaysoptimistic

I will be same one among you.... just helping Activity2004 in her work....nothing more alwaysoptimistic

alwaysoptimistic profile image
alwaysoptimistic in reply tocure

This is good,Admin!

Activity2004 profile image
Activity2004Administrator in reply tocure

That's right. Nothing will be changing about a person just because they are an Admin.. Everyone is on the same footing.

Activity2004 profile image
Activity2004Administrator

Third, what do you want to stay the same or be changed?

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

This is a good decision of appointing cure as an Admin as this forum requires atleast one Admin from Indian origin!

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

Yes, that's right.

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

He (cure ) has appreciable knowledge of indian foods,Ayurveda,Indian life style etc.

cure profile image
cureAdministrator in reply toalwaysoptimistic

what happened our @anup jee is not responding???

gphilip profile image
gphilip in reply toActivity2004

Why can't it be change to some group or method of science...I mean, modern science, ancient...then chemical, natural, home remedies, etc...

Activity2004 profile image
Activity2004Administrator in reply togphilip

Can you please explain? What can/can't be changed, Hidden ?

gphilip profile image
gphilip in reply toActivity2004

I mean, there may be different remedies for same problem...so let people choose and have a go...can be kept as a reference or for study...for instance somebody like Sk45 may be a Homeopath, and @Cure may be a Ayurveda expert...may be @anup a web expert...bring them together, have data in the locker and share whomever want it...

Activity2004 profile image
Activity2004Administrator

So, do we want to change anything or keep things the way they are?

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

For motivation-there should be some rewards for contributors like-Contributor of the week/month etc.

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

Like on a weekly basis give badges for certain ideas? Postings?

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

Yes!For useful postings/replies.

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

That's a good idea!

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

Thank you,Admin!

cure profile image
cureAdministrator

I think it is very old issue..that we are not able to tag anup.... it is some system problem... we can report this to HU

Activity2004 profile image
Activity2004Administrator in reply tocure

I'm working on it. It's a glitch on HU's side. It works on other groups.

suryakaizen profile image
suryakaizen

I'm signing in nearly half an hour late. My apologies. Now waiting to see what will happen.

cure profile image
cureAdministrator in reply tosuryakaizen

No problem suryakaizen welcome..

Plz share your thoughts...

Activity2004 profile image
Activity2004Administrator in reply tocure

Thank you, cure !

cure profile image
cureAdministrator in reply toActivity2004

suramo bhai are you around???

Activity2004 profile image
Activity2004Administrator in reply tocure

He said he'd try to come, but he might not be able, cure .

cure profile image
cureAdministrator

We all are here for one cause....that is How to make our life more comfortable....

The experience shared by other members... and contribution from knowledgeable members help us to gain more knowledge about our condition..

Activity2004 profile image
Activity2004Administrator in reply tocure

Exactly right!

cure profile image
cureAdministrator in reply tocure

also it encourages us to fight back...there are many members around who are controlling diabetes successfully...that is great motivation...

cure profile image
cureAdministrator in reply tocure

further..it is said that in coming years T2 will grow very fast in Indian population... and therefore this forum can be used as educational platform even for non diabetic ppl... so we all active members should spread the word...

alwaysoptimistic profile image
alwaysoptimistic in reply tocure

Well said,Admin!

Activity2004 profile image
Activity2004Administrator

Any other ideas/suggestions?

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

Multiple images posting facility in main posting and image posting facility in replies!

cure profile image
cureAdministrator in reply toalwaysoptimistic

yes....even if we can have facility to upload PDF file... this will help us to upload medical reports in one go...

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

I'm sorry. What is multiple image posting facility in main posting? I don't understand.

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

Presently,we can post only one image with our posting.That limits our way of passing information in the form of images.

gphilip profile image
gphilip in reply toalwaysoptimistic

Yes, that is required...

cure profile image
cureAdministrator

In Pune...in city where I am staying...we have already started personal meetings...over coffee (without sugar)

and it is really great to meet face to face....

alwaysoptimistic profile image
alwaysoptimistic in reply tocure

That is a good initiative,Admin!

Activity2004 profile image
Activity2004Administrator

Any issues or concerns you'd like to bring up?

suryakaizen profile image
suryakaizen

I actually stumbled upon this HU group by happy accident, while searching for some advice, some guidelines to help deal with my daughter's diabetes and breast cancer, both diagnosed at the same time. The hospital and the doctors are good, but I felt that we need to do something beyond just take medicine.

The LCHF diet came as a total surprise to me. And when I persuaded my daughter to try it, it seemed to work. She is 37, overweight; but her weight is now down from 130 to 105 kgs in 6 months (it kept fluctuating when she was on steroids post-each chemo). She is now undergoing radiation therapy which will last a month. She takes 10 units of Lantus at night. Her aim is to get free of all diabetes medication when her treatment is done.

Maybe the LCHF diet has also helped her tolerate the chemos? I don't know. She has been drinking lot of buttermilk, eating vegetables, lots of lentils, less rice (brown rice), some brown bread and oats dosas and dalia (broken whole wheat). Her fasting sugar ranges from 110-114, and PPBS 140 or so. Importantly, her general health and energy levels have been good. Exercising - not much, really at present. She plans to do it when the weather warms up.

Sorry for such a long post. I am happy to be here with all of you!

cure profile image
cureAdministrator in reply tosuryakaizen

suryakaizen I am really happy that she is doing well...may God keep her always smiling and happy...

suryakaizen profile image
suryakaizen in reply tocure

Thank you cure.

Activity2004 profile image
Activity2004Administrator in reply tosuryakaizen

Welcome to the group and the first meeting of the new year!

suryakaizen profile image
suryakaizen

Just to add that my daughter's HB1AC has dropped from 10.2 in July 2016 to 6.4 this month.

Activity2004 profile image
Activity2004Administrator in reply tosuryakaizen

That's fantastic news!

Activity2004 profile image
Activity2004Administrator

Any questions?

gphilip profile image
gphilip in reply toActivity2004

Expand the horizons...

Activity2004 profile image
Activity2004Administrator in reply togphilip

How?

gphilip profile image
gphilip in reply toActivity2004

Not just by the cure...why and how Diabetics has became a epidemic sort to be addressed...

Activity2004 profile image
Activity2004Administrator in reply togphilip

Ok

Sk45 profile image
Sk45 in reply toActivity2004

I m sorry to sound off but I m really feeling so frustrated that I don't see half of what I read here being done in my country in the government hospitals.

suryakaizen profile image
suryakaizen

I have a question: if you start out on diabetes medication (Lantus, glycipage, etc.) what are the effects of going off it? Does it have consequences?

Activity2004 profile image
Activity2004Administrator in reply tosuryakaizen

Please call/see the doctor about it.

cure profile image
cureAdministrator

Well Hidden sir... this T2 is just like hydra.... multi headed.... why we became diabetic has many reasons....some would believe it is due to wrong food habits..some would say it is due to pollution.... some would say due to genetically modified grains.. etc

But real cause is unknown....

No one knows the exact remedy... we all are searching....experimenting...

This forum is for all of us to share our experience...

alwaysoptimistic profile image
alwaysoptimistic in reply tocure

If people share their diet and reports then we can learn more and we can have better control.

cure profile image
cureAdministrator in reply toalwaysoptimistic

exactly....also we must encourage ppl to share what they understood about condition....

gphilip profile image
gphilip in reply tocure

Yes, you said it...let us have a look at it, without being biased...we all know prevention is better than cure, maybe some day we will find it, and leave the future generation at least a clue...

cure profile image
cureAdministrator in reply togphilip

sure we can spread word....so our future generation could be saved...

suramo profile image
suramoStar in reply tocure

cure

I beg to differ.

Primary cause is genetic.

Secondary or precipitating factors are those said by you.

Sk45 profile image
Sk45

Can someone on insulin for 15 years get to stop it for good and go back to tablets?

Activity2004 profile image
Activity2004Administrator in reply toSk45

Please make an appointment with your doctor and let us know what they say.

suramo profile image
suramoStar in reply toSk45

Sk45

yes. One can with IDM.

Activity2004 profile image
Activity2004Administrator

anup, do you have any questions?

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

I am missing Anup Ji!

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

Hang on..... Be right back!

suryakaizen profile image
suryakaizen

I tend to think that there may be many reasons for becoming diabetic - wrong food habits, obesity, whatever. But the main trigger seems to be stress. I my daughter's case, there was a major fight between her and her husband last year: he left the house, and came back after 2 months. The kind of tensions she went through are what I think triggered the diabetes, and perhaps the cancer? These are grey areas that medical research does not touch. What part does stress play in triggering diabetes?

What is your experience?

Activity2004 profile image
Activity2004Administrator in reply tosuryakaizen

My experience is a little unusual. I had most of my pancreas removed at 2 weeks old as an infant because it put out too much insulin.

alwaysoptimistic profile image
alwaysoptimistic in reply toActivity2004

Oh!

suramo profile image
suramoStar in reply toActivity2004

Activity2004

Never heard of. And now you are devoid of insulin !! Two week old infant is a very early age to decide such drastic step. Well i should not doubt the treating doctors and US health care. Is/ was your mother diabetic ?

Activity2004 profile image
Activity2004Administrator in reply tosuramo

No. They thought she was.

suramo profile image
suramoStar in reply toActivity2004

Activity2004

What about the other functions of pancreas like glucagon and digestive enzymes ?

Activity2004 profile image
Activity2004Administrator in reply tosuramo

I take digestive enzymes. Glucagon kicks out, but not when it's necessary. Insulin is put out when the pancreas "wakes up". No reason why.

suramo profile image
suramoStar in reply toActivity2004

Activity2004

Have they removed whole pancreas ? I mean you said most of. What does that mean. I'm really shaken to think about your story.

Digestive enzymes etc taken orally can't fulfil pancreatic secretions. There are so many trace elements and the digestive enzymes themselves are protein, many of them. So must be enteric coated. Frankly i'd like to know from you how effective are the oral enzymes and if you can eat anything and everything i mean that a diabetic can.

Activity2004 profile image
Activity2004Administrator in reply tosuramo

The pancreas is a sliver left. Very small. The pills do work, but needs to be taken with lots of different foods or it doesn't get digested and I could have cramping because the food is not going anywhere.

suramo profile image
suramoStar in reply toActivity2004

Activity2004

Isn't there anyway out ? How about pancreatic transplant ?

Activity2004 profile image
Activity2004Administrator in reply tosuramo

Not yet.

cure profile image
cureAdministrator

Sk45 yes... here we learn many new things..

Sk45 profile image
Sk45

Ok thank you admin for having me here and it was nice meeting all of you. I m off to sleep.

So good night all.

alwaysoptimistic profile image
alwaysoptimistic in reply toSk45

Good night, Sk45 !

Activity2004 profile image
Activity2004Administrator in reply toSk45

Good night! We will have our next meeting in a few weeks. Will let you know when and what time. Probably the same time, but need to check with the schedules for everyone.

cure profile image
cureAdministrator in reply toSk45

Good night Sk45

gphilip profile image
gphilip in reply toSk45

Good night...

suryakaizen profile image
suryakaizen

Sk45, the night is young and we have just started! But okay, good night, sleep well.

alwaysoptimistic profile image
alwaysoptimistic

Bye everybody!

Please be regular at HU/DI to help each other!!

Activity2004 profile image
Activity2004Administrator in reply toalwaysoptimistic

I think that's all for the meeting unless anyone else has something that they would like to share.

gphilip profile image
gphilip

It was nice of you all...thanks!

cure profile image
cureAdministrator in reply togphilip

Yeah I think we can conclude the meeting by words

ॐ सर्वे भवन्तु सुखिनः

सर्वे सन्तु निरामयाः ।

सर्वे भद्राणि पश्यन्तु

मा कश्चिद्दुःखभाग्भवेत् ।

ॐ शान्तिः शान्तिः शान्तिः ॥

Meaning:

1: Om, May All become Happy,

2: May All be Free from Illness.

3: May All See what is Auspicious,

4: May no one Suffer.

5: Om Peace, Peace, Peace.

cure profile image
cureAdministrator in reply tocure

Thank you everyone....

jan-ran profile image
jan-ran

Sorry I missed it all! I haven't been getting HU posts since before Christmas. Thought I d been dumped or something. Have read all the 'meeting' posts, very interesting. Nice to see so many friendly people chatting. JanR

Activity2004 profile image
Activity2004Administrator in reply tojan-ran

Would you like to suggest any ideas for either changing something or keeping things the way they are right now?

suryakaizen profile image
suryakaizen

We will try after my daughter's radiation therapy is done. Yes Anup, pushing the envelope is a hard one for a vegetarian, but I think it can be done. You, Sir, have been a great inspiration to me in this whole process. I see you indefatigably repeating advice for new members who, out of distress, are asking the same questions, without reading up on the links and you patiently respond.

As a caregiver, I have learnt a lot from HU and you. I am forced to be creative and discover how veggie foods can be prepared in various ways so we don't feel deprived.

suramo profile image
suramoStar

@Anup

We need to find out if cancer cells can utilize ketone bodies as a fuel and how efficiently.

in reply tosuramo

All cells without mitochondria can use only glucose and not Ketones

Cancer cells are devoid of mitochondria. Hence only glucose is the fuel.

What causes cancer is not known but it's known that cancer cells feed on glucose

Sorry was our of network on that day. Hence could not participate

suramo profile image
suramoStar in reply to

Hidden

Hi. Good to see after a long time.

Mitochondria are the powerhouses of cells without which cells can't survive / live. And cancer cells have uncontrolled proliferation and respiratory activities. They can't be without mitochondria. Please read this.

"Contrary to conventional wisdom, functional mitochondria are essential for the cancer cell. Although mutations in mitochondrial genes are common in cancer cells, they do not inactivate mitochondrial energy metabolism but rather alter the mitochondrial bioenergetic and biosynthetic state"

The issue with cancer cells is they don't obey natural rules.

Shashi. Like our body cells have genetic material in the nucleus mitochondria have their own genetic material.

in reply tosuramo

suramo

Right

Sorry. Was wrong on this

I had not recalled properly

Need to study more on this.

Thank you..

suramo profile image
suramoStar in reply to

Hidden

😝😝😝😝. It's alright. But i'm happy i get a chance for revision. Talking to you gyus is the toughest thing and i can't make any loose talk. During my residency I used to ask many questions out of an effort to learn everything and my teacher(s) always used to tell me that "you (i) can make mistakes but i ( my teacher ) have to give correct answer. "Par aap log kitna padhate ho yaar. Kitna gyan rakhate ho. It's always good to go to the roots of a problem.

in reply tosuramo

Thank you suramo

Good to have you in this forum

So we get some 1st hand knowledge

suramo profile image
suramoStar in reply to

Hidden

😊😊👍👍

suramo profile image
suramoStar

@Anup

She is taking lots of carbs and lanctus insulin. Her a1c 6.4 perhaps suggests that the insulin dosages are okay.

suramo profile image
suramoStar

anup

That's exactly my point. There should be some study to establish if keto diet can be used to treat cancers. By the way diabetes is considered a risk factor for cancer.

Dear all

I was in a low signal area

Hence unable to participate

3 days meeting and then 7 days holiday in a low coverage area. Back yesterday

One point:

Facility to upload images

Anyway diabetes has to be controlled by

Diet

Exercise

Some help from some natural stuff like herbs initially

Moral support

cure profile image
cureAdministrator in reply to

No worries Hidden ji though we missed you... may be u can participate in next meet....

This is a very good concept launched by our admin Activity2004 to bring all active members together to share there thoughts....

This will be regular practice in future....so we can exchange thoughts and come up with new ideas..

One suggestion made by alwaysoptimistic was most wonderful suggesting to award active participants with some badges...this will encourage members to participate and contribute more for the benefit of other fellow members...

in reply tocure

Good idea

Activity2004 profile image
Activity2004Administrator in reply tocure

Will be starting the badge idea soon.

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