Pain associated with PD.

[RoosterPD]

help! I have severe pain in my neck due to Dystonia. What med, if any, can I take to help with the pain? My neurologist gives me Tylenol 3. This does nothing!

[Hidden]

Botox

[Dennis]

By Mayo Clinic LIDODERM By Doctor Flector Patch 2nd Doc pain pills

By Doc Prolotherapy

Good luck.

Dennis

[DANIEL]

Only thing that helped my husband was dbs surgery. we use to spend many a day at the hospital for that. Also that was the only thing that the dbs surgery helped. But for us it was enough. The pain for Daniel was just too much. Hope you find something that will help you. And I hope yours isn't as bad as Daniel's was.

[Paul_Dineen]

> severe pain in my neck due to Dystonia

Ouch, that sounds much worse than the Dyskinesia I've had (en.wikipedia.org/wiki/Dyski.... Good luck with that. That's all I can offer, since I'm unfamiliar with Dystonia (until I just looked it up). I hope you can get what Dennis recommended and it helps you.

This caught my attention because I've also been having neck pain for several months, I think from 3 factors: 1) cervical stenosis (pressure by the vertebrae on the nerve column (not serious enuf on its own to justify surgery, at least in Jan 2009), 2) Dyskinesia causing head movement that makes my neck sore, 3) suboptimal computer ergonomics from when I worked from home for about a month during the summer. (I couldn't drive because I was all off the PD meds in prep for seeing a new [to me] neurologist)...

The cervical stenosis is apparently permanent.

The Dyskinesia is greatly diminished, as my neurologist had me reduce he levadopa and take Amantadine.

The home computer ergonomics are fine for typical shorter durations. Eg, not typical workday durations, which I'll be fully back to after Monday Dec 12, when I finish the requirements for an online (Stanford) course.

I'm hoping that the neck pain finally goes away as I use the home PC less, and the neurologist perhaps makes more med changes. I'm hoping that it's not a worsening of the cervical stenosis. Else I may be looking at 3 operations in several years(?): for the stenosis, for a possibly pinched ulnar nerve causing hand numbness, DBS likely some day.

I'm 55 and my last operation was a month after I was born. Three in relatively little time could be a challenge.

[Paul_Dineen]

Here are few comments about possible meds:

en.wikipedia.org/wiki/Dysto...

[MagicMax]

Might try Gabapentin. It reduces nerve pain.

[JoyD55]

It took me a while to work out that Tylenol is paracetamol. I can see why your neurologist has sugested its use. For some folks it does give pain relief but for many (like me) you might as well take smarties. However in general it is considered quite a safe choice because it is less likely to cause gut problems compared with similar drugs (NSAIDS like Iboprofen) however do not be tempted to simply take higher doses as it is very toxic to the liver at high doses.

Other possibly better medications are probably not the first choice of your physician because of other side effects or the risks of addiction or interference with your other medications but there have to be better options than taking something that isn't helping at all.A better mix of ant-PD drugs may help too... as has been observed above.

I do hope you can get your physician/neurologist to better understand the problem, they probably do not realise how serious this aspect is for you. There are many things that can be tried.. the wikipedia link suggested above is a good survey! Muscle relaxants might be the best thing but I was very interested to see Botox suggested. If your pain is associated with the almost constant contraction of one set of muscles this could be absolutely the answer for you.

I would be very interested to know whether anyone has any more experience of the use of botox or indeed other effective medications.

Has anyone tried acupuncture?

Do please nag your neurologist... and let us know how you get on.

[Moderator_1]

Pain in Parkinson's

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parkinsons.org.uk/PDF/FS37_...